Evaluation of Informed Consent with Teach-Back and Audio Assistance to Improve Willingness to Participate in a Clinical Trial Among Underrepresented Minorities: A Randomized Pilot Trial

J Empir Res Hum Res Ethics. 2023 Dec;18(5):372-379. doi: 10.1177/15562646231207266. Epub 2023 Oct 12.

Abstract

The informed consent form (ICF) is intended to assure that subject participation in research studies is informed and voluntary. Yet, there is ample evidence that many subjects do not adequately understand the concepts and language in a clinical trial ICF, which may undermine their willingness to participate in a clinical trial. In a randomized setting, we compared a standard read-only ICF to an audio-assisted ICF with or without teach-back. We found that audio-assisted ICFs significantly improved willingness to participate in a mock clinical trial among our sample of primarily African-American participants.

Keywords: audio-assisted; clinical trial enrollment; human subject research; informed consent; teach-back; underrepresented groups.

Publication types

  • Randomized Controlled Trial

MeSH terms

  • Black or African American
  • Consent Forms*
  • Humans
  • Informed Consent*
  • Minority Groups
  • Patient Participation*
  • Pilot Projects