Patient-centred research agenda for females with bleeding disorders
Haemophilia
.
2023 Nov;29(6):1665-1667.
doi: 10.1111/hae.14883.
Epub 2023 Oct 18.
Authors
Mabel Crescioni
1
,
Whitney Armijo
1
,
Janet Chupka
1
,
DeBran Tarver
1
,
Robert Sidonio Jr
2
,
Megan C Brown
2
,
Kristina M Haley
3
,
Patricia Huguelet
4
,
Karen Bowe-Hause
5
,
Julia Conde
6
,
Stormy Johnson
6
,
Aamina Iftikhar
6
,
Candace Lerman
6
Affiliations
1
Engagement and Community Health, Hemophilia Federation of America, Washington, District of Columbia, USA.
2
Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, Georgia, USA.
3
Department of Pediatrics, Oregon Health & Science University, Portland, Oregon, USA.
4
Children's Hospital Colorado, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
5
Member & Community Relations, Hemophilia Alliance, Lansdale, Pennsylvania, USA.
6
Patient Advocate, Hemophilia Federation of America, Washington, District of Columbia, USA.
PMID:
37850819
DOI:
10.1111/hae.14883
No abstract available
Publication types
Letter
MeSH terms
Blood Coagulation Disorders*
Female
Hemorrhagic Disorders*
Humans
Grants and funding
#EASCS-23237/Patient-Centered Outcomes Research Institute (PCORI) Award