A novel DHTKD1 gene mutation with ALS like presentation: a case report

Amyotroph Lateral Scler Frontotemporal Degener. 2024 May;25(3-4):413-415. doi: 10.1080/21678421.2023.2273366. Epub 2023 Oct 25.

Abstract

DHTKD1 is a nuclear gene that encodes "dehydrogenase E1 and transketolase domain-containing 1", essential in mitochondrial metabolism. First identified in the patients of 2-amino-apidic and 2 oxoapidic aciduria, mutation in this gene has recently been implicated in CMT2Q and ALS. Here we report the case of a septuagenarian who presented with a 2 years progressive history of respiratory and neck muscle weakness without significant bulbar and limb involvement. Clinical and electrophysiological examination revealed lower motor neuron involvement with widespread chronic denervation and reinnervation. Clinical exome sequencing revealed a heterozygous nonsense variant in exon 8 of the DHTKD1 gene, which was previously described in CMT2Q. This report highlights the pleotropic phenotypic presentation of DHTKD1 mutation and the need for genetic testing even in sporadic cases of ALS presenting at a later age.

Keywords: ALS; ALS genotypes; CMT2Q; DHTKD1.

Publication types

  • Case Reports

MeSH terms

  • Aged
  • Amyotrophic Lateral Sclerosis* / diagnosis
  • Amyotrophic Lateral Sclerosis* / genetics
  • Amyotrophic Lateral Sclerosis* / metabolism
  • Humans
  • Ketoglutarate Dehydrogenase Complex / genetics
  • Ketoglutarate Dehydrogenase Complex / metabolism
  • Ketone Oxidoreductases* / genetics
  • Ketone Oxidoreductases* / metabolism
  • Mitochondria
  • Mutation / genetics

Substances

  • DHTKD1 protein, human
  • Ketoglutarate Dehydrogenase Complex
  • Ketone Oxidoreductases