Research priorities in HIV, aging and rehabilitation: building on a framework with the Canada-International HIV and Rehabilitation Research Collaborative

Kelly K O'Brien; Francisco Ibáñez-Carrasco; Kelly Birtwell; Graeme Donald; Darren A Brown; Andrew D Eaton; Bakita Kasadha; Emma Stanmore; Natalie St Clair-Sullivan; Liam Townsend; Jaime H Vera; Patricia Solomon

doi:10.1186/s12981-023-00582-4

Research priorities in HIV, aging and rehabilitation: building on a framework with the Canada-International HIV and Rehabilitation Research Collaborative

AIDS Res Ther. 2023 Dec 9;20(1):86. doi: 10.1186/s12981-023-00582-4.

Authors

Kelly K O'Brien^{1

2

3}, Francisco Ibáñez-Carrasco⁴, Kelly Birtwell⁵, Graeme Donald⁶, Darren A Brown⁷, Andrew D Eaton^{8

9}, Bakita Kasadha¹⁰, Emma Stanmore^{6

11}, Natalie St Clair-Sullivan¹², Liam Townsend^{13

14}, Jaime H Vera^{12

15}, Patricia Solomon¹⁶

Affiliations

¹ Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 160-500 University Avenue, Toronto, ON, M5G 1V7, Canada. [email protected].
² Institute of Health Policy, Management and Evaluation (IHPME), Dalla Lana School of Public Health, University of Toronto, 155 College Street, 4th Floor, Toronto, ON, M5T 3M7, Canada. [email protected].
³ Rehabilitation Sciences Institute (RSI), University of Toronto, 500 University Avenue, Room 160, Toronto, ON, M5G 1V7, Canada. [email protected].
⁴ Dalla Lana School of Public Health, University of Toronto, 155 College Street, 4th Floor, Toronto, ON, M5T 3M7, Canada.
⁵ Centre for Primary Care and Health Services Research, University of Manchester, Oxford Road, Manchester, M13 9PL, United Kingdom.
⁶ Division of Nursing, Midwifery and Social Work, Faculty of Biology, Medicine and Health, School of Health Sciences, University of Manchester, Oxford Road, Manchester, M13 9PL, United Kingdom.
⁷ Therapies Department, Chelsea and Westminster Hospital NHS Foundation Trust, London, United Kingdom.
⁸ Faculty of Social Work, University of Regina, Saskatoon Campus, The Concourse, 111-116 Research Drive, Saskatoon, SK, S7N 3R3, Canada.
⁹ Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor St W, Toronto, ON, M5S 1V4, Canada.
¹⁰ Nuffield Department of Primary Care Health Sciences, Medical Sciences Division, University of Oxford, Radcliffe Primary Care Building, Radcliffe Observatory Quarter, Woodstock Road, Oxford, OX2 6GG, United Kingdom.
¹¹ Healthy Ageing Research Group (HARG), University of Manchester, Manchester, United Kingdom.
¹² The Lawson Unit, Royal Sussex County Hospital, Brighton and Sussex University Hospitals NHS Trust, Eastern Road, Brighton, BN2 5BE, United Kingdom.
¹³ Department of Infectious Diseases, St James's Hospital, Dublin 8, Dublin, Ireland.
¹⁴ Department of Clinical Medicine, School of Medicine, Trinity Translational Medicine Institute, Trinity College Dublin, St. James's Hospital, Dublin 8, Dublin, Ireland.
¹⁵ Department of Global Health and Infection, Brighton and Sussex Medical School, University of Sussex, Brighton, BN1 9PX, East Sussex, United Kingdom.
¹⁶ School of Rehabilitation Science, McMaster University, 1400 Main Street West, Room 403, Hamilton, ON, L8S 1C7, Canada.

Abstract

Background: In 2016, the Canada-International HIV and Rehabilitation Research Collaborative established a framework of research priorities in HIV, aging and rehabilitation. Our aim was to review and identify any new emerging priorities from the perspectives of people living with HIV, clinicians, researchers, and representatives from community organizations.

Methods: We conducted a multi-stakeholder international consultation with people living with HIV, researchers, clinicians and representatives of community-based organizations. Stakeholders convened for a one-day Forum in Manchester, United Kingdom (UK) to discuss research priorities via a web-based questionnaire and facilitated discussions. We analyzed data using conventional content analytical techniques and mapped emerging priorities onto the foundational framework.

Results: Thirty-five stakeholders from the UK(n = 29), Canada(n = 5) and Ireland(n = 1) attended the Forum, representing persons living with HIV or representatives from community-based organizations(n = 12;34%), researchers or academics(n = 10;28%), service providers(n = 6;17%), clinicians(n = 4;11%); and trainees(n = 4;11%). Five priorities mapped onto the Framework of Research Priorities across three content areas: A-Episodic Health and Disability Aging with HIV (disability, frailty, social participation), B-Rehabilitation Interventions for Healthy Aging across the Lifespan (role, implementation and impact of digital and web-based rehabilitation interventions) and C-Outcome Measurement in HIV and Aging (digital and web-based rehabilitation health technology to measure physical activity). Stakeholders indicated methodological considerations for implementing digital and web-based rehabilitation interventions into research and practice and the importance of knowledge transfer and exchange among the broader community.

Conclusion: Results highlight the sustained importance of the Framework of Research Priorities and provide further depth and areas of inquiry related to digital and web-based rehabilitation interventions and technology aging with HIV.

Keywords: Aging; Disability; HIV; Rehabilitation; Research priorities.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Aging
Canada
HIV Infections*
Humans
Rehabilitation Research*
Surveys and Questionnaires