Leveraging stories of cardiac amyloidosis patients of African ancestry or descent to support patient-derived data elements for efficient diagnosis and treatment

Affiliations

• ¹ National Alliance Against Disparities in Patient Health, Woodbridge, VA, United States.
• ² Department of Population Medicine, Harvard Pilgrim Healthcare Institute and Harvard Medical School, Boston, MA, United States.
• ³ Duke-Margolis Center for Health Policy, Washington, DC, United States.
• ⁴ Southern Nevada Black Nurses Association, Las Vegas, NV, United States.
• ⁵ School of Pharmacy, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
• ⁶ Kolling Institute, Faculty of Medicine and Health, The University of Sydney and the Northern Sydney Local Health District, Sydney, NSW, Australia.