Turning Loss Into Legacy: Opportunities for Tissue and Eye Donation in Community Hospice/Palliative Care

J Hosp Palliat Nurs. 2024 Jun 1;26(3):149-157. doi: 10.1097/NJH.0000000000001015. Epub 2024 Jan 10.

Abstract

Organ, tissue, and eye donations provide opportunities to leave a legacy by saving and/or enhancing the quality of life of others. There has been little published related to tissue or eye donation in hospice/palliative care and few initiatives to facilitate donation among hospice patients/families. Donation myths, gaps in knowledge, and, most significantly, lack of donation referral processes result in missed opportunities for patient/families to consider donation. One donor has the potential to impact 75 lives or more through tissue donation and 2 lives through eye donation. Hospice/palliative care providers can play key roles related to education, advocacy, and collaboration. The support of hospice/palliative care organizations and the local Organ Procurement Organization/Tissue and Eye Recovery Agency are essential for facilitating donation opportunities. This article summarizes current literature, examines legislation and regulations related to donation, presents a case that illustrates an opportunity for hospice community based donation, and shares practices that support donation in hospice/palliative care organizations together with the local Organ Procurement Organization/Tissue and Eye Recovery Agency. This article will hopefully provide the impetus for further study and the development of practices to optimize donation in hospice/palliative care, thus providing more patients and families the opportunity to turn loss into legacy.

MeSH terms

  • Eye
  • Hospice Care / methods
  • Hospice Care / trends
  • Humans
  • Palliative Care* / methods
  • Palliative Care* / standards
  • Palliative Care* / trends
  • Tissue and Organ Procurement* / methods
  • Tissue and Organ Procurement* / standards
  • Tissue and Organ Procurement* / statistics & numerical data
  • Tissue and Organ Procurement* / trends