Listening to patients and parents with sickle cell disease: the totality of gene therapy risks may outweigh the perceived benefits

Affiliations

• ¹ Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN.
• ² Section of Bioethics, St. Jude Children's Research Hospital, Memphis, TN.
• ³ Bone Marrow Transplantation and Cellular Therapy, St. Jude Children's Research Hospital, Memphis, TN.
• ⁴ Department of Hematology, St. Jude Children's Research Hospital, Memphis, TN.
• ⁵ Sickle Cell Disease Consortium, Cumming, GA.
• ⁶ Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN.
• ⁷ Department of Communication and Film and Affiliate Faculty, School of Public Health, University of Memphis, Memphis, TN.
• ⁸ Treuman Katz Center for Pediatric Bioethics and Palliative Care and the Seattle Children's Research Institute, Seattle, WA.
• ⁹ Division of Pediatric Hematology/Oncology, The Herman and Walter Samuelson Children's Hospital at Sinai and Johns Hopkins Berman Institute of Bioethics, Baltimore, MD.