RDH5 and RLBP1-Associated Inherited Retinal Diseases: Refining the Spectrum of Stationary and Progressive Phenotypes

Am J Ophthalmol. 2024 Nov:267:160-171. doi: 10.1016/j.ajo.2024.06.016. Epub 2024 Jun 28.

Abstract

Purpose: To investigate the clinical, functional, and imaging characteristics in patients affected by inherited retinal diseases associated with RDH5 and RLBP1 gene variants, and to report novel genotype-phenotype correlations.

Design: Retrospective single-center cohort study.

Methods: Twenty-two patients with molecularly confirmed RLBP1-associated retinopathy and 5 with RDH5-associated retinopathy. Medical records were reviewed to obtain data on family history and ophthalmologic examinations, including retinal imaging and full-field electroretinography (ffERG). Genotype was determined by targeted next-generation sequencing followed by confirmation and familial segregation by Sanger sequencing.

Results: The median (interquartile ranges) age at baseline for the RDH5 and RLBP1 cohort was 44.6 (38.2-67.9) years and 36.9 (23.1-45.2) years, respectively. Macular atrophy (MA) was found in approximately 80% of eyes from both cohorts. The RLBP1 genotype was associated with a lower macular volume by 0.28 mm3 (95% CI, -0.46 to -0.11; P = .005) compared to the RDH5 genotype. In both genotypic cohorts, we found a significant annual rate of macular volume loss, estimated at -0.007 mm3/y (95% CI, -0.012 to -0.001; P = .02), without any significant difference between the two genotypes. Three unrelated patients homozygous for the c.361C>T p.(Arg121Trp) RLBP1 variant showed minimal impairment of both the rod and cone systems function on ffERG and absence of MA.

Conclusions: Progressive MA in addition to congenital night blindness can be identified in adult patients with RDH5-associated retinopathy. Vice versa, hypomorphic RLBP1 variants may cause milder retinal phenotypes rather than the typical severe rod-cone dystrophy with MA. These findings could prove beneficial to improve the prognostication of patients and help in designing future interventional trials.

MeSH terms

  • Adult
  • Aged
  • Alcohol Oxidoreductases* / genetics
  • Carrier Proteins / genetics
  • DNA Mutational Analysis
  • Electroretinography*
  • Female
  • Genetic Association Studies
  • Genotype
  • Humans
  • Male
  • Middle Aged
  • Mutation
  • Night Blindness / diagnosis
  • Night Blindness / genetics
  • Night Blindness / physiopathology
  • Pedigree
  • Phenotype*
  • Retinal Diseases* / diagnosis
  • Retinal Diseases* / genetics
  • Retinal Diseases* / physiopathology
  • Retrospective Studies
  • Tomography, Optical Coherence*
  • Visual Acuity / physiology
  • Young Adult

Substances

  • Alcohol Oxidoreductases
  • retinol dehydrogenase 5
  • 11-cis-retinal-binding protein
  • Carrier Proteins