A Scoping Review of the Intersectionality of Autism and Intellectual and Developmental Disability with Social Inequity on Diagnosis and Treatment of Youth

J Child Adolesc Psychopharmacol. 2024 Sep;34(7):292-301. doi: 10.1089/cap.2023.0058. Epub 2024 Jul 3.

Abstract

Objective: To describe how the intersectionality of race, ethnicity, and language with autism and intellectual and developmental disability (IDD) impacts mental health inequities in psychopharmacological management of youth. Method: This was a scoping review in which a series of searches were conducted in PubMed, Web of Science, Google Scholar, and manual review of the articles collected. Results: Although autism and/or IDD increases the risk for poor physical and mental health, social determinants of health such as race, ethnicity, and language account for approximately a third of poor outcomes. Minoritized children with autism/IDD experience significantly greater delays to diagnosis and misdiagnosis and are less likely to receive appropriate services. Access to psychological testing and psychosocial services is often limited by availability, skilled practitioners, a shortage of non-English-language providers or interpreters, and poor reimbursement. Conclusion: The intersectionality of autism and/or IDD with race, ethnicity, and language compounds the health inequities associated with either of these challenges independently.

Keywords: autism; health equity; intellectual developmental disability; psychopharmacology; social determinants of health.

Publication types

  • Review
  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Autistic Disorder* / diagnosis
  • Autistic Disorder* / therapy
  • Child
  • Developmental Disabilities* / diagnosis
  • Ethnicity
  • Health Services Accessibility
  • Healthcare Disparities
  • Humans
  • Intellectual Disability* / diagnosis
  • Language
  • Racial Groups
  • Social Determinants of Health