TEMPI syndrome: difficult to diagnose, "easy" to treat?

Ann Hematol. 2024 Sep;103(9):3787-3793. doi: 10.1007/s00277-024-05893-8. Epub 2024 Jul 30.

Abstract

TEMPI syndrome is a rare, acquired disorder with multisystemic manifestations. It is classified as a plasma cell disorder and is characterized by telangiectasias, erythrocytosis, monoclonal gammopathy, perinephric fluid collections and intrapulmonary shunt. Even though TEMPI's pathophysiology remains elusive, it responds to anti-myeloma therapy indicating that the monoclonal protein or clone plays a key role. We present a challenging case of a 73-year-old man with erythrocytosis and deteriorating renal function with nephrotic-range proteinuria in whom after extensive work up, the diagnosis of TEMPI syndrome was made. He was received treatment with daratumumab-bortezomib-cyclophosphamide and dexamethasone (Dara-VCD) and achieved a hematological and clinical response. We also report preliminary data on a multiplex assay for cytokines and growth factors for two patients with TEMPI syndrome and note lower levels for non-specific innate immunity related cytokines. A direct link between renal impairment and TEMPI syndrome is not currently established; cytokine deregulation could potentially be involved in the ischemic changes observed in the renal biopsy of our patient.

Keywords: Bortezomib; Daratumumab; Erythrocytosis; Monoclonal gammopathy; Plasma cell dyscrasia; TEMPI syndrome; Telangiectasias.

Publication types

  • Case Reports

MeSH terms

  • Aged
  • Antibodies, Monoclonal / administration & dosage
  • Antibodies, Monoclonal / therapeutic use
  • Antineoplastic Combined Chemotherapy Protocols / therapeutic use
  • Bortezomib / administration & dosage
  • Bortezomib / therapeutic use
  • Cyclophosphamide / administration & dosage
  • Cyclophosphamide / therapeutic use
  • Dexamethasone / administration & dosage
  • Dexamethasone / therapeutic use
  • Humans
  • Male
  • Paraproteinemias / complications
  • Paraproteinemias / diagnosis
  • Polycythemia* / diagnosis
  • Polycythemia* / therapy
  • Syndrome

Substances

  • daratumumab
  • Cyclophosphamide
  • Bortezomib
  • Antibodies, Monoclonal
  • Dexamethasone