Digital Health Tools for Miscarriage Support: A Survey of Canadian Women Facing Early Pregnancy Loss

Objectives: Early pregnancy loss (EPL) affects 1 in 4 recognised pregnancies, yet often lacks patient-centred supportive care. This study assesses the feasibility and acceptance of a digital health tool to support those affected by EPL. The objectives are to (1) understand the experiences of those who have miscarried, (2) explore their methods of accessing health information, and (3) determine their preferences regarding digital tool content and design.

Methods: This mixed-methods study included Canadian persons aged 18-45 years who self-reported to have experienced EPL up to 12⁶ weeks gestation in the preceding 2 years. Recruitment was via social media and hospital posters. Participants completed an online survey and optional follow-up interview between September 2021 and April 2022. Survey responses were analysed using descriptive statistics. Interview findings are presented in a separate paper. Local ethics approval was obtained.

Results: Of the 185 survey respondents, 28% revealed that they are somewhat or very dissatisfied with the overall health care they received for their miscarriage. Thirty-nine percent of survey respondents are somewhat or very dissatisfied with how their mental/emotional health was addressed. Notably, 82% supported the development of a digital health tool for EPL care. Ninety-one percent of survey respondents use the internet to access health information.

Conclusions: Many participants reported dissatisfaction with their care after EPL but showed strong interest in a user-friendly digital tool that provides general information and mental health support. These findings, along with qualitative interview data, will guide the development and testing of the desired digital health tool, aiming to enhance patient experience and support after miscarriage.