The Global Burden of Disease (GBD) study aims to characterize the worldwide prevalence and morbidity of major diseases, while PatientsLikeMe (PLM) is an online community providing patient-generated insights into lived experiences; for dermatologic conditions, quantitative comparisons of GBD and PLM data revealed expected demographic differences but also notable correlations, highlighting their potential as complementary data sources elucidating unmet patient needs and priorities.
Keywords: DALY; GBD; Global Burden of Disease; PLM; PatientsLikeMe; comparative analysis; demographics; dermatology; disability-adjusted life year; forums; internet; lived experience; online support communities; prevalence; social media; users.
© Mindy D Szeto, Lina Alhanshali, Chandler W Rundle, Madeline Adelman, Michelle Hook Sobotka, Emily Woolhiser, Jieying Wu, Colby L Presley, Jalal Maghfour, John Meisenheimer, Jaclyn B Anderson, Robert P Dellavalle. Originally published in JMIR Dermatology (http://derma.jmir.org).