Background: The decision of proceeding with a pancreas transplant (PTx) is a complex one, and patient education is important to allow transplant candidates to make an informed and autonomous decision. In this study, we assessed the readability and reliability of online information provided by PTx centers in the United States.
Methods: Websites of PTx centers active between 2022 and 2023 were searched for patient information on pancreas transplantation. Readability was assessed using eight validated formulas. Reliability was assessed using the Journal of the American Medical Association criteria.
Results: Of 117 PTx centers, 57 provided online information material. High-volume centers were more likely to provide patient information compared to medium- and low-volume centers (76.6%, 45.6%, 34.6%, respectively). Average readability was at the 11th grade and beyond, with no difference among the three groups (11.9, 11.4, 11.4). Reliability was low, with two centers providing information on the material sources. Only one center provided information in a language other than English.
Conclusions: Readability of online material on PTx provided by US transplant centers is low, well above the recommended 6th grade-level. Transplant centers, national societies and patient advocacy groups should collaborate in developing information material that is evidence-based, easy to read, and available in multiple languages.
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