Measuring what really matters: Why developing patient-reported outcome measures in Duchenne muscular dystrophy should involve patients and caregivers
Dev Med Child Neurol
.
2024 Dec 31.
doi: 10.1111/dmcn.16225.
Online ahead of print.
Authors
Sebastian Friedrich
1
,
Gudrun Reeskau
2
,
Joachim Sproß
2
,
Thorsten Langer
1
Affiliations
1
Department of Neuropediatrics and Muscle Disorders, Children's Hospital, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
2
German Association for Patients affected by Muscle Diseases, DGM, Freiburg, Germany.
PMID:
39737885
DOI:
10.1111/dmcn.16225
No abstract available