Aboriginal Community Controlled Organisations Leading the Way in Child Health Research

J Community Health. 2025 Jan 20. doi: 10.1007/s10900-024-01433-7. Online ahead of print.

Abstract

Historically, Aboriginal and Torres Strait Islander research in Australia has adhered to Western research paradigms and contributed to the adverse impacts of colonisation. However, recent developments driven by Aboriginal and Torres Strait Islander people and scholars, and development of ethical guidelines for research, have promoted a more inclusive and collaborative research landscape. In this study, published papers and internal documents arising from a long-term partnership between Marninwarntikura Women's Resource Centre (MWRC) and the University of Sydney (USYD) from 2009 to 2023 were analysed using the Aboriginal and Torres Strait Islander Quality Appraisal Tool and consultations with project partners. Every project had Aboriginal and Torres Strait Islander governance, leadership, and inclusive consultation; was driven by community-identified priorities, built local capacity, and benefitted the community. There was an increase in the use of Indigenous research paradigms and data/intellectual property (IP) agreements over time, reflecting responsiveness to community leadership. This partnership exemplifies community-driven, co-designed, Aboriginal-led health research and serves as a model for effective collaboration with Aboriginal and Torres Strait Islander communities.

Keywords: Aboriginal and Torres Strait Islander Peoples; Adverse childhood experiences; Child health; Fetal alcohol spectrum disorders; Health services; Indigenous.