Palliative care in amyotrophic lateral sclerosis

J Neurol. 1997 Oct:244 Suppl 4:S11-7. doi: 10.1007/pl00007719.

Abstract

The poor prognosis of amyotrophic lateral sclerosis (ALS) makes palliative care a challenge for the neurologist. Most disabilities associated with progressive disease can be ameliorated by symptomatic treatment. Prognosis and treatment options should be openly discussed with the patient and his/her relatives. Nutritional deficiency due to pronounced dysphagia can be efficiently relieved by a percutaneous enterogastrostomy. Respiratory insufficiency can be treated by non-invasive ventilation at home, provided the familial environment is supportive. Adequate assistance and palliative treatment in the terminal phase is of paramount importance.

Publication types

  • Review

MeSH terms

  • Advance Directives
  • Amyotrophic Lateral Sclerosis / complications
  • Amyotrophic Lateral Sclerosis / psychology
  • Amyotrophic Lateral Sclerosis / therapy*
  • Anxiety / prevention & control
  • Coma / etiology
  • Deglutition Disorders / therapy
  • Dysarthria / rehabilitation
  • Dysarthria / therapy
  • Dyspnea / etiology
  • Dyspnea / therapy
  • Gastrostomy / psychology
  • Humans
  • Hypercapnia / etiology
  • Nutrition Disorders / prevention & control
  • Palliative Care*
  • Physician-Patient Relations
  • Respiratory Therapy
  • Societies
  • Terminal Care*
  • Truth Disclosure