Mild or absent clinical signs in twin sisters with short-chain acyl-CoA dehydrogenase deficiency

Eur J Pediatr. 1998 Apr;157(4):317-20. doi: 10.1007/s004310050819.

Abstract

Two HLA-identical twin sisters are reported, of whom one has remained essentially asymptomatic, and an episode of hypotonia and decreased level of conciousness being the only relevant clinical finding in the other. Organic acid-analysis revealed that ethylmalonate was constantly, although sometimes only slightly, increased. No abnormal acylglycines or acylcarnitines could be detected. Enzyme assay in cultured skin fibroblasts confirmed short-chain acyl-CoA dehydrogenase deficiency.

Conclusion: The lack of appropriate biochemical markers for this deficiency makes the diagnosis difficult and consequently, the low number of patients described may be the result of underdiagnosis.

Publication types

  • Case Reports
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Acyl-CoA Dehydrogenase
  • Acyl-CoA Dehydrogenases / deficiency*
  • Acyl-CoA Dehydrogenases / genetics
  • Child, Preschool
  • Diagnosis, Differential
  • Diseases in Twins / genetics*
  • Female
  • Fibroblasts / enzymology
  • Follow-Up Studies
  • Humans
  • Infant
  • Malonates / urine
  • Twins, Monozygotic / genetics

Substances

  • Malonates
  • ethylmalonic acid
  • Acyl-CoA Dehydrogenases
  • Acyl-CoA Dehydrogenase