Revealed identity: a study of the process of genetic counselling

Soc Sci Med. 1998 Dec;47(11):1653-8. doi: 10.1016/s0277-9536(98)00241-x.

Abstract

This paper describes a qualitative study of the processes employed within a genetic counselling consultation. These processes, it is argued, can be seen to provide the patient with a genetic identity. But unlike the new identity conferred by the diagnosis of many chronic medical conditions a genetic identity is presented as an old one that is now revealed. This represents a reversal of the stigmatising process: instead of a spoiled identity replacing an actual one, the genetic consultation involves revealing an actual identity in the place of a previously presumed one. In this way, genetic counselling reconstructs identity in the past as well as in the future.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Communication
  • Genetic Counseling*
  • Genetic Testing
  • Humans
  • Physician-Patient Relations