Shelly A - Search Results

1

Health Equity Implications of Missing Data Among Youths With Childhood-Onset Systemic Lupus Erythematosus: A Proof-of-Concept Study in the Childhood Arthritis and Rheumatology Research Alliance Registry.

Woo JMP, Simmonds F, Dennos A, Son MBF, Lewandowski LB, Rubinstein TB; CARRA Registry investigators. Woo JMP, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2285-2294. doi: 10.1002/acr.25136. Epub 2023 May 30. Arthritis Care Res (Hoboken). 2023. PMID: 37093036 Free PMC article.

2

Childhood-Onset Lupus Nephritis in the Childhood Arthritis and Rheumatology Research Alliance Registry: Short-Term Kidney Status and Variation in Care.

Smitherman EA, Chahine RA, Beukelman T, Lewandowski LB, Rahman AKMF, Wenderfer SE, Curtis JR, Hersh AO; CARRA Registry Investigators. Smitherman EA, et al. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1553-1562. doi: 10.1002/acr.25002. Epub 2023 Feb 12. Arthritis Care Res (Hoboken). 2023. PMID: 36775844 Free PMC article.

3

Insurance Status and Tumor Necrosis Factor Inhibitor Initiation Among Children With Juvenile Idiopathic Arthritis in the CARRA Registry.

Roberts JE, Williams K, Dallas J, Eckert M, Huie L, Smitherman E, Soulsby WD, Zhao Y, Son MBF; CARRA Registry Investigators. Roberts JE, et al. J Rheumatol. 2023 Aug;50(8):1047-1057. doi: 10.3899/jrheum.220871. Epub 2022 Dec 15. J Rheumatol. 2023. PMID: 36521922 Free PMC article.

4

Intraarticular steroids as DMARD-sparing agents for juvenile idiopathic arthritis flares: Analysis of the Childhood Arthritis and Rheumatology Research Alliance Registry.

Hahn T, Daymont C, Beukelman T, Groh B, Hays K, Bingham CA, Scalzi L; CARRA Registry investigators. Hahn T, et al. Pediatr Rheumatol Online J. 2022 Nov 25;20(1):107. doi: 10.1186/s12969-022-00770-y. Pediatr Rheumatol Online J. 2022. PMID: 36434731 Free PMC article.

5

Pharmacokinetics of hydroxychloroquine in paediatric lupus: data from a novel, direct-to-family clinical trial.

Balevic SJ, Randell R, Weiner D, Beard C, Schanberg LE, Hornik CP, Cohen-Wolkowiez M, Gonzalez D; with the CARRA Registry investigators. Balevic SJ, et al. Lupus Sci Med. 2022 Nov;9(1):e000811. doi: 10.1136/lupus-2022-000811. Lupus Sci Med. 2022. PMID: 36328395 Free PMC article. Clinical Trial.

6

Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry.

Smitherman EA, Chahine RA, Bitencourt N, Rahman AKMF, Lawson EF, Chang JC; CARRA Registry Investigators and CARRA Transition Workgroup. Smitherman EA, et al. J Rheumatol. 2023 Jan;50(1):98-106. doi: 10.3899/jrheum.220514. Epub 2022 Sep 15. J Rheumatol. 2023. PMID: 36109074

7

Disease Recapture Rates After Medication Discontinuation and Flare in Juvenile Idiopathic Arthritis: An Observational Study Within the Childhood Arthritis and Rheumatology Research Alliance Registry.

Ringold S, Dennos AC, Kimura Y, Beukelman T, Shrader P, Phillips TA, Kohlheim M, Schanberg LE, Yeung RSM, Horton DB; Childhood Arthritis and Rheumatology Research Alliance Registry Investigators. Ringold S, et al. Arthritis Care Res (Hoboken). 2023 Apr;75(4):715-723. doi: 10.1002/acr.24994. Epub 2022 Dec 21. Arthritis Care Res (Hoboken). 2023. PMID: 35921198

8

Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry.

Neely J, Ardalan K, Huber A, Kim S; Childhood Arthritis and Rheumatology Research Alliance Investigators. Neely J, et al. Pediatr Rheumatol Online J. 2022 Jul 19;20(1):50. doi: 10.1186/s12969-022-00709-3. Pediatr Rheumatol Online J. 2022. PMID: 35854378 Free PMC article.

9

Trajectories of disease activity in patients with JIA in the Childhood Arthritis and Rheumatology Research Alliance Registry.

Shiff NJ, Shrader P, Correll CK, Dennos A, Phillips T, Beukelman T; CARRA Registry Investigators. Shiff NJ, et al. Rheumatology (Oxford). 2023 Feb 1;62(2):804-814. doi: 10.1093/rheumatology/keac335. Rheumatology (Oxford). 2023. PMID: 35703945

10

How can we improve information for people affected by cancer? A national survey exploring gaps in current information provision, and challenges with accessing cancer information online.

Hyatt A, Shelly A, Cox R, Humphries E, Lock G, Varlow M. Hyatt A, et al. Among authors: shelly a. Patient Educ Couns. 2022 Aug;105(8):2763-2770. doi: 10.1016/j.pec.2022.04.009. Epub 2022 Apr 15. Patient Educ Couns. 2022. PMID: 35465976 Free article.

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