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Consent insufficient for data release.
Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Nicol D, et al. Among authors: kaye j. Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. Science. 2019. PMID: 31048483 No abstract available.
Research ethics recommendations for whole-genome research: consensus statement.
Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M. Caulfield T, et al. Among authors: kaye j. PLoS Biol. 2008 Mar 25;6(3):e73. doi: 10.1371/journal.pbio.0060073. PLoS Biol. 2008. PMID: 18366258 Free PMC article.
The path forward for DNA data.
Boddington P, Hawkins N, Heeney C, de Vries J, Kaye J. Boddington P, et al. Among authors: kaye j. Science. 2008 Nov 21;322(5905):1186-7. doi: 10.1126/science.322.5905.1186c. Science. 2008. PMID: 19023061 No abstract available.
Assessing the privacy risks of data sharing in genomics.
Heeney C, Hawkins N, de Vries J, Boddington P, Kaye J. Heeney C, et al. Among authors: kaye j. Public Health Genomics. 2011;14(1):17-25. doi: 10.1159/000294150. Epub 2010 Mar 29. Public Health Genomics. 2011. PMID: 20339285 Free PMC article.
Legislation on direct-to-consumer genetic testing in seven European countries.
Borry P, van Hellemondt RE, Sprumont D, Jales CF, Rial-Sebbag E, Spranger TM, Curren L, Kaye J, Nys H, Howard H. Borry P, et al. Among authors: kaye j. Eur J Hum Genet. 2012 Jul;20(7):715-21. doi: 10.1038/ejhg.2011.278. Epub 2012 Jan 25. Eur J Hum Genet. 2012. PMID: 22274578 Free PMC article.
Research priorities. ELSI 2.0 for genomics and society.
Kaye J, Meslin EM, Knoppers BM, Juengst ET, Deschênes M, Cambon-Thomsen A, Chalmers D, De Vries J, Edwards K, Hoppe N, Kent A, Adebamowo C, Marshall P, Kato K. Kaye J, et al. Science. 2012 May 11;336(6082):673-4. doi: 10.1126/science.1218015. Science. 2012. PMID: 22582247 Free PMC article.
Building a data sharing model for global genomic research.
Kosseim P, Dove ES, Baggaley C, Meslin EM, Cate FH, Kaye J, Harris JR, Knoppers BM. Kosseim P, et al. Among authors: kaye j. Genome Biol. 2014 Aug 11;15(8):430. doi: 10.1186/s13059-014-0430-2. Genome Biol. 2014. PMID: 25221857 Free PMC article.
1,584 results