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Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia.
Bloemeke J, Sommer R, Witt S, Bullinger M, Nordon C, Badia FJ, González FL, Leiva-Gea A, Delgado Rufino FB, Mayoral-Cleries F, Romero-Sanchiz P, Clamagirand Saiz V, Nogueira-Arjona R, Mohnike K, Quitmann J. Bloemeke J, et al. Among authors: badia fj. Qual Life Res. 2019 Sep;28(9):2553-2563. doi: 10.1007/s11136-019-02210-z. Epub 2019 May 15. Qual Life Res. 2019. PMID: 31093848
Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES).
Bloemeke J, Sommer R, Witt S, Dabs M, Badia FJ, Bullinger M, Quitmann J. Bloemeke J, et al. Among authors: badia fj. Disabil Rehabil. 2019 Jul;41(15):1815-1825. doi: 10.1080/09638288.2018.1447028. Epub 2018 Mar 8. Disabil Rehabil. 2019. PMID: 29516753