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Page 1
The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial.
Carrier ME, Kwakkenbos L, Nielson WR, Fedoruk C, Nielsen K, Milette K, Pope J, Frech T, Gholizadeh S, Hummers L, Johnson SR, Piotrowski P, Jewett L, Gordon J, Chung L, Bilsker D, Turner KA, Cumin J, Welling J, Fortune C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Hudson M, Larche M, van Breda W, Suarez-Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Wigley F, Thombs BD; SPIN Investigators. Carrier ME, et al. Among authors: cumin j. JMIR Res Protoc. 2020 Apr 24;9(4):e16799. doi: 10.2196/16799. JMIR Res Protoc. 2020. PMID: 32329747 Free PMC article.
Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.
Kwakkenbos L, Cumin J, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Rannou F, Welling J, Thombs BD; SPIN Investigators. Kwakkenbos L, et al. Among authors: cumin j. BMJ Open. 2019 Oct 14;9(10):e029542. doi: 10.1136/bmjopen-2019-029542. BMJ Open. 2019. PMID: 31615796 Free PMC article.
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.
Nordlund J, Henry RS, Kwakkenbos L, Carrier ME, Levis B, Nielson WR, Bartlett SJ, Dyas L, Tao L, Fedoruk C, Nielsen K, Hudson M, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Levis AW, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauve M, Rodríguez-Reyna TS, Larche M, van Breda W, Suarez-Almazor ME, Wurz A, Culos-Reed N, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Nordlund J, et al. Among authors: cumin j. Trials. 2021 Nov 27;22(1):856. doi: 10.1186/s13063-021-05827-z. Trials. 2021. PMID: 34838105 Free PMC article.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program.
Kwakkenbos L, Østbø N, Carrier ME, Nielson WR, Fedoruk C, Levis B, Henry RS, Pope J, Frech T, Gholizadeh S, Johnson SR, Piotrowski P, Jewett LR, Gordon J, Chung L, Bilsker D, Tao L, Turner KA, Cumin J, Welling J, Fortuné C, Leite C, Gottesman K, Sauvé M, Reyna TSR, Hudson M, Larche M, van Breda W, Suarez-Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Kwakkenbos L, et al. Among authors: cumin j. Pilot Feasibility Stud. 2022 Feb 26;8(1):45. doi: 10.1186/s40814-022-00994-5. Pilot Feasibility Stud. 2022. PMID: 35219340 Free PMC article.
The Scleroderma Research Topics Survey for patients and health care professionals: A Scleroderma Patient-centered Intervention Network Project.
Tao L, Fedoruk C, Turner KA, Cumin J, Carrier ME, Carboni-Jiménez A, Pépin MR, Kwakkenbos L, Thombs BD; SPIN Patient Advisory Board. Tao L, et al. Among authors: cumin j. J Scleroderma Relat Disord. 2019 Oct;4(3):165-172. doi: 10.1177/2397198319842969. Epub 2019 Apr 23. J Scleroderma Relat Disord. 2019. PMID: 35382508 Free PMC article.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND).
Kwakkenbos L, Carrier ME, Welling J, Turner KA, Cumin J, Pépin M, van den Ende C, Schouffoer AA, Hudson M, van Breda W, Sauve M, Mayes MD, Malcarne VL, Nielson WR, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Among authors: cumin j. PeerJ. 2022 Aug 4;10:e13471. doi: 10.7717/peerj.13471. eCollection 2022. PeerJ. 2022. PMID: 35945943 Free PMC article. Clinical Trial.
Identifying barriers and facilitators to physical activity for people with scleroderma: a nominal group technique study.
Harb S, Cumin J, Rice DB, Peláez S, Hudson M, Bartlett SJ, Roren A, Furst DE, Frech TM, Nguyen C, Nielson WR, Thombs BD, Shrier I; Scleroderma Patient-centered Intervention Network – Physical Activity Enhancement Patient Advisory Team. Harb S, et al. Among authors: cumin j. Disabil Rehabil. 2021 Nov;43(23):3339-3346. doi: 10.1080/09638288.2020.1742391. Epub 2020 Mar 19. Disabil Rehabil. 2021. PMID: 32191536
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