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Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
Van Bulck L, Goossens E, Luyckx K, Apers S, Oechslin E, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Van Bulck L, et al. Among authors: cook sc. BMC Health Serv Res. 2020 Jun 3;20(1):496. doi: 10.1186/s12913-020-05361-9. BMC Health Serv Res. 2020. PMID: 32493367 Free PMC article.
The CALF (Congenital Heart Disease in Adults Lower Extremity Systemic Venous Health in Fontan Patients) study.
Valente AM, Bhatt AB, Cook S, Earing MG, Gersony DR, Aboulhosn J, Opotowsky AR, Lui G, Gurvitz M, Graham D, Fernandes SM, Khairy P, Webb G, Gerhard-Herman M, Landzberg MJ; AARCC (Alliance for Adult Research in Congenital Cardiology) Investigators. Valente AM, et al. J Am Coll Cardiol. 2010 Jul 6;56(2):144-50. doi: 10.1016/j.jacc.2010.02.048. J Am Coll Cardiol. 2010. PMID: 20620728 Free article.
Arrhythmia burden in adults with surgically repaired tetralogy of Fallot: a multi-institutional study.
Khairy P, Aboulhosn J, Gurvitz MZ, Opotowsky AR, Mongeon FP, Kay J, Valente AM, Earing MG, Lui G, Gersony DR, Cook S, Ting JG, Nickolaus MJ, Webb G, Landzberg MJ, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Khairy P, et al. Circulation. 2010 Aug 31;122(9):868-75. doi: 10.1161/CIRCULATIONAHA.109.928481. Epub 2010 Aug 16. Circulation. 2010. PMID: 20713900
Aortic root dilatation in adults with surgically repaired tetralogy of fallot: a multicenter cross-sectional study.
Mongeon FP, Gurvitz MZ, Broberg CS, Aboulhosn J, Opotowsky AR, Kay JD, Valente AM, Earing MG, Lui GK, Fernandes SM, Gersony DR, Cook SC, Ting JG, Nickolaus MJ, Landzberg MJ, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC). Mongeon FP, et al. Among authors: cook sc. Circulation. 2013 Jan 15;127(2):172-9. doi: 10.1161/CIRCULATIONAHA.112.129585. Epub 2012 Dec 6. Circulation. 2013. PMID: 23224208
Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial).
Gurvitz M, Valente AM, Broberg C, Cook S, Stout K, Kay J, Ting J, Kuehl K, Earing M, Webb G, Houser L, Opotowsky A, Harmon A, Graham D, Khairy P, Gianola A, Verstappen A, Landzberg M; Alliance for Adult Research in Congenital Cardiology (AARCC) and Adult Congenital Heart Association. Gurvitz M, et al. J Am Coll Cardiol. 2013 May 28;61(21):2180-4. doi: 10.1016/j.jacc.2013.02.048. Epub 2013 Mar 28. J Am Coll Cardiol. 2013. PMID: 23542112 Free PMC article. Clinical Trial.
Improving heart disease knowledge and research participation in adults with congenital heart disease (the Health, Education and Access Research Trial: HEART-ACHD).
Valente AM, Landzberg MJ, Gianola A, Harmon AJ, Cook S, Ting JG, Stout K, Kuehl K, Khairy P, Kay JD, Earing M, Houser L, Broberg C, Milliren C, Opotowsky AR, Webb G, Verstappen A, Gurvitz M; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators; Adult Congenital Heart Association (ACHA). Valente AM, et al. Int J Cardiol. 2013 Oct 9;168(4):3236-40. doi: 10.1016/j.ijcard.2013.04.004. Epub 2013 May 4. Int J Cardiol. 2013. PMID: 23651823
Clinical research priorities in adult congenital heart disease.
Cotts T, Khairy P, Opotowsky AR, John AS, Valente AM, Zaidi AN, Cook SC, Aboulhosn J, Ting JG, Gurvitz M, Landzberg MJ, Verstappen A, Kay J, Earing M, Franklin W, Kogon B, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Cotts T, et al. Among authors: cook sc. Int J Cardiol. 2014 Feb 15;171(3):351-60. doi: 10.1016/j.ijcard.2013.12.034. Epub 2013 Dec 24. Int J Cardiol. 2014. PMID: 24411207 Free PMC article.
174 results