Jandhyala R - Search Results

1

The international X-linked hypophosphataemia (XLH) registry (NCT03193476): rationale for and description of an international, observational study.

Padidela R, Nilsson O, Makitie O, Beck-Nielsen S, Ariceta G, Schnabel D, Brandi ML, Boot A, Levtchenko E, Smyth M, Jandhyala R, Mughal Z. Padidela R, et al. Among authors: jandhyala r. Orphanet J Rare Dis. 2020 Jun 30;15(1):172. doi: 10.1186/s13023-020-01434-4. Orphanet J Rare Dis. 2020. PMID: 32605590 Free PMC article.

2

Development, validation and implementation of the medical affairs pharmaceutical physician work-related quality of life instrument.

Jandhyala R. Jandhyala R. Curr Med Res Opin. 2023 Dec;39(12):1567-1574. doi: 10.1080/03007995.2023.2174747. Epub 2023 Feb 8. Curr Med Res Opin. 2023. PMID: 36719367

3

FGF23 and its role in X-linked hypophosphatemia-related morbidity.

Beck-Nielsen SS, Mughal Z, Haffner D, Nilsson O, Levtchenko E, Ariceta G, de Lucas Collantes C, Schnabel D, Jandhyala R, Mäkitie O. Beck-Nielsen SS, et al. Among authors: jandhyala r. Orphanet J Rare Dis. 2019 Feb 26;14(1):58. doi: 10.1186/s13023-019-1014-8. Orphanet J Rare Dis. 2019. PMID: 30808384 Free PMC article. Review.

4

A novel method for observing proportional group awareness and consensus of items arising from list-generating questioning.

Jandhyala R. Jandhyala R. Curr Med Res Opin. 2020 May;36(5):883-893. doi: 10.1080/03007995.2020.1734920. Epub 2020 Mar 11. Curr Med Res Opin. 2020. PMID: 32098506

5

Concordance between the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW) and the EuroQoL-5D (EQ-5D) measures of quality of life outcomes in adults with X-linked hypophosphatemia.

Jandhyala R. Jandhyala R. Orphanet J Rare Dis. 2022 Feb 23;17(1):81. doi: 10.1186/s13023-022-02250-8. Orphanet J Rare Dis. 2022. PMID: 35197083 Free PMC article.

6

Comment on: "Patient Registries: An Underused Resource for Medicines Evaluation: Operational Proposals for Increasing the Use of Patient Registries in Regulatory Assessments".

Jandhyala R. Jandhyala R. Drug Saf. 2019 Dec;42(12):1515-1516. doi: 10.1007/s40264-019-00862-x. Drug Saf. 2019. PMID: 31552605 No abstract available.

7

The multiple stakeholder approach to real-world evidence (RWE) generation: observing multidisciplinary expert consensus on quality indicators of rare disease patient registries (RDRs).

Jandhyala R. Jandhyala R. Curr Med Res Opin. 2021 Jul;37(7):1249-1257. doi: 10.1080/03007995.2021.1927689. Epub 2021 May 21. Curr Med Res Opin. 2021. PMID: 33989087

8

Factors Influencing the Generation of Evidence from Simple Data Held in International Rare Disease Patient Registries.

Jandhyala R, Christopher S. Jandhyala R, et al. Pharmaceut Med. 2020 Feb;34(1):31-38. doi: 10.1007/s40290-019-00316-w. Pharmaceut Med. 2020. PMID: 32048210

9

Neutral theory: applicability and neutrality of using generic health-related quality of life tools in diseases or conditions where specific tools are available.

Jandhyala R. Jandhyala R. BMC Med Res Methodol. 2021 Apr 26;21(1):86. doi: 10.1186/s12874-021-01279-w. BMC Med Res Methodol. 2021. PMID: 33902436 Free PMC article.

10

A protocol for an international, multicenter, prospective, non-interventional observational registry for patients with hypertriglyceridemia.

Freedman S, de-Madaria E, Bruckert E, Löhr M, Rebours V, Jandhyala R. Freedman S, et al. Among authors: jandhyala r. Curr Med Res Opin. 2023 Dec;39(12):1663-1670. doi: 10.1080/03007995.2023.2255129. Epub 2023 Sep 4. Curr Med Res Opin. 2023. PMID: 37665595

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