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The Canadian Neuromuscular Disease Registry 2010-2019: A Decade of Facilitating Clinical Research Througha Nationwide, Pan-NeuromuscularDisease Registry.
Hodgkinson V, Lounsberry J, M'Dahoma S, Russell A, Jewett G, Benstead T, Brais B, Campbell C, Johnston W, Lochmüller H, McCormick A, Nguyen CT, O'Ferrall E, Oskoui M, Abrahao A, Briemberg H, Bourque PR, Botez S, Cashman N, Chapman K, Chrestian N, Crone M, Dobrowolski P, Dojeiji S, Dowling JJ, Dupré N, Genge A, Gonorazky H, Grant I, Hasal S, Izenberg A, Kalra S, Katzberg H, Krieger C, Leung E, Linassi G, Mackenzie A, Mah JK, Marrero A, Massie R, Matte G, McAdam L, McMillan H, Melanson M, Mezei MM, O'Connell C, Pfeffer G, Phan C, Plamondon S, Poulin C, Rodrigue X, Schellenberg K, Selby K, Sheriko J, Shoesmith C, Smith RG, Taillon M, Taylor S, Venance S, Warman-Chardon J, Worley S, Zinman L, Korngut L. Hodgkinson V, et al. Among authors: oskoui m, m dahoma s. J Neuromuscul Dis. 2021;8(1):53-61. doi: 10.3233/JND-200538. J Neuromuscul Dis. 2021. PMID: 32925088 Free PMC article.
The Canadian Neuromuscular Disease Registry: Connecting patients to national and international research opportunities.
Wei Y, McCormick A, MacKenzie A, O'Ferrall E, Venance S, Mah JK, Selby K, McMillan HJ, Smith G, Oskoui M, Hogan G, McAdam L, Mabaya G, Hodgkinson V, Lounsberry J, Korngut L, Campbell C. Wei Y, et al. Among authors: oskoui m. Paediatr Child Health. 2018 Feb;23(1):20-26. doi: 10.1093/pch/pxx125. Epub 2017 Dec 8. Paediatr Child Health. 2018. PMID: 29479275 Free PMC article.
Response to the Canadian Agency for Drugs and Technologies in Health and Institut national d'excellence en santé et en services sociaux decision regarding nusinersen for Spinal Muscular Atrophy.
Campbell C, Selby K, McMillan H, Vajsar J, Korngut L, Brais B, MacKenzie A, Oskoui M. Campbell C, et al. Among authors: oskoui m. Can J Neurol Sci. 2018 Sep;45(5):516-517. doi: 10.1017/cjn.2018.59. Epub 2018 Jul 24. Can J Neurol Sci. 2018. PMID: 30039778 No abstract available.
A National Spinal Muscular Atrophy Registry for Real-World Evidence.
Hodgkinson VL, Oskoui M, Lounsberry J, M'Dahoma S, Butler E, Campbell C, MacKenzie A, McMillan HJ, Simard L, Vajsar J, Brais B, Chapman KM, Chrestian N, Crone M, Dobrowolski P, Dojeiji S, Dowling JJ, Dupré N, Genge A, Gonorazky H, Hasal S, Izenberg A, Johnston W, Leung E, Lochmüller H, Mah JK, Marerro A, Massie R, McAdam L, McCormick A, Melanson M, Mezei MM, Nguyen CE, O'Connell C, O'Ferrall EK, Pfeffer G, Phan C, Plamondon S, Poulin C, Rodrigue X, Schellenberg KL, Selby K, Sheriko J, Shoesmith C, Smith G, Taillon M, Taylor S, Warman Chardon J, Worley S, Korngut L. Hodgkinson VL, et al. Among authors: oskoui m, m dahoma s. Can J Neurol Sci. 2020 Nov;47(6):810-815. doi: 10.1017/cjn.2020.111. Epub 2020 Jun 4. Can J Neurol Sci. 2020. PMID: 32493524 Free PMC article.
Response to Provincial Governments' Decisions Regarding Monitoring for Adults with Spinal Muscular Atrophy.
Hodgkinson VL, Chapman K, Izenberg A, Lochmüller H, O'Connell C, O'Ferrall EK, Oskoui M, Pfeffer G, Plamondon S, Rodrigue X, Shoesmith C, Warman-Chardon J, Brais B, Korngut L, Schellenberg K. Hodgkinson VL, et al. Among authors: oskoui m. Can J Neurol Sci. 2021 Mar;48(2):201-203. doi: 10.1017/cjn.2020.161. Epub 2020 Jul 27. Can J Neurol Sci. 2021. PMID: 32713403 No abstract available.
Cerebral palsy in Canadian Indigenous children.
Chen A, Dyck Holzinger S, Oskoui M, Shevell M; Canadian Cerebral Palsy Registry. Chen A, et al. Among authors: oskoui m. Dev Med Child Neurol. 2021 May;63(5):614-622. doi: 10.1111/dmcn.14776. Epub 2020 Dec 13. Dev Med Child Neurol. 2021. PMID: 33314061 Free article.
Reldesemtiv in Patients with Spinal Muscular Atrophy: a Phase 2 Hypothesis-Generating Study.
Rudnicki SA, Andrews JA, Duong T, Cockroft BM, Malik FI, Meng L, Wei J, Wolff AA, Genge A, Johnson NE, Tesi-Rocha C, Connolly AM, Darras BT, Felice K, Finkel RS, Shieh PB, Mah JK, Statland J, Campbell C, Habib AA, Kuntz NL, Oskoui M, Day JW. Rudnicki SA, et al. Among authors: oskoui m. Neurotherapeutics. 2021 Apr;18(2):1127-1136. doi: 10.1007/s13311-020-01004-3. Epub 2021 Feb 23. Neurotherapeutics. 2021. PMID: 33624184 Free PMC article. Clinical Trial.
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