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The effect of emicizumab prophylaxis on long-term, self-reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies.
Skinner MW, Négrier C, Paz-Priel I, Chebon S, Jiménez-Yuste V, Callaghan MU, Lehle M, Niggli M, Mahlangu J, Shapiro A, Shima M, Campinha-Bacote A, Levy GG, Oldenburg J, von Mackensen S, Pipe SW. Skinner MW, et al. Among authors: von mackensen s. Haemophilia. 2021 Sep;27(5):854-865. doi: 10.1111/hae.14363. Epub 2021 Jun 25. Haemophilia. 2021. PMID: 34171159 Free PMC article.
Quality of life assessment in haemophilia.
Bullinger M, von Mackensen S. Bullinger M, et al. Among authors: von mackensen s. Haemophilia. 2004 Mar;10 Suppl 1:9-16. doi: 10.1111/j.1355-0691.2004.00874.x. Haemophilia. 2004. PMID: 14987244 Review.
Quality of life in haemophilia.
Gringeri A, Von Mackensen S. Gringeri A, et al. Among authors: von mackensen s. Haemophilia. 2008 Jul;14 Suppl 3:19-25. doi: 10.1111/j.1365-2516.2008.01709.x. Haemophilia. 2008. PMID: 18510517
Measuring patient-reported outcomes in haemophilia clinical research.
Globe D, Young NL, Von Mackensen S, Bullinger M, Wasserman J; Healthrelated Quality Of Life Expert Working Group Of The International Prophylaxis Study Group. Globe D, et al. Among authors: von mackensen s. Haemophilia. 2009 Jul;15(4):843-52. doi: 10.1111/j.1365-2516.2008.01961.x. Epub 2009 Apr 7. Haemophilia. 2009. PMID: 19473425 Review.
91 results