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A population-based study of scoliosis among males diagnosed with a dystrophinopathy identified by the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).
Conway KM, Gedlinske A, Mathews KD, Perlman S, Johnson N, Butterfield R, Hung M, Bounsanga J, Matthews D, Oleszek J, Romitti PA. Conway KM, et al. Among authors: oleszek j. Muscle Nerve. 2022 Feb;65(2):193-202. doi: 10.1002/mus.27464. Epub 2021 Dec 1. Muscle Nerve. 2022. PMID: 34787322 Free PMC article.
Neurobehavioral Concerns Among Males with Dystrophinopathy Using Population-Based Surveillance Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network.
Caspers Conway K, Mathews KD, Paramsothy P, Oleszek J, Trout C, Zhang Y, Romitti PA; MD STARnet. Caspers Conway K, et al. Among authors: oleszek j. J Dev Behav Pediatr. 2015 Jul-Aug;36(6):455-63. doi: 10.1097/DBP.0000000000000177. J Dev Behav Pediatr. 2015. PMID: 26020585 Free PMC article.
Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy.
Haber G, Conway KM, Paramsothy P, Roy A, Rogers H, Ling X, Kozauer N, Street N, Romitti PA, Fox DJ, Phan HC, Matthews D, Ciafaloni E, Oleszek J, James KA, Galindo M, Whitehead N, Johnson N, Butterfield RJ, Pandya S, Venkatesh S, Bhattaram VA. Haber G, et al. Among authors: oleszek j. Muscle Nerve. 2021 Feb;63(2):181-191. doi: 10.1002/mus.27113. Epub 2020 Nov 17. Muscle Nerve. 2021. PMID: 33150975 Free PMC article.
Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources.
Frishman N, Conway KC, Andrews J, Oleson J, Mathews K, Ciafaloni E, Oleszek J, Lamb M, Matthews D, Paramsothy P, McKirgan L, Romitti P. Frishman N, et al. Among authors: oleszek j. Health Qual Life Outcomes. 2017 Feb 10;15(1):33. doi: 10.1186/s12955-017-0612-1. Health Qual Life Outcomes. 2017. PMID: 28187773 Free PMC article.
Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population-based surveillance of major muscular dystrophies at four U.S. sites, 2007-2011.
Do TN, Street N, Donnelly J, Adams MM, Cunniff C, Fox DJ, Weinert RO, Oleszek J, Romitti PA, Westfield CP, Bolen J; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Do TN, et al. Among authors: oleszek j. Birth Defects Res. 2018 Nov 15;110(19):1404-1411. doi: 10.1002/bdr2.1371. Epub 2018 Aug 2. Birth Defects Res. 2018. PMID: 30070776 Free PMC article.
Patterns of growth in ambulatory males with Duchenne muscular dystrophy.
West NA, Yang ML, Weitzenkamp DA, Andrews J, Meaney FJ, Oleszek J, Miller LA, Matthews D, DiGuiseppi C. West NA, et al. Among authors: oleszek j. J Pediatr. 2013 Dec;163(6):1759-1763.e1. doi: 10.1016/j.jpeds.2013.08.004. Epub 2013 Oct 6. J Pediatr. 2013. PMID: 24103921
Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.
Latimer R, Street N, Conway KC, James K, Cunniff C, Oleszek J, Fox D, Ciafaloni E, Westfield C, Paramsothy P; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR net). Latimer R, et al. Among authors: oleszek j. J Child Neurol. 2017 Jun;32(7):663-670. doi: 10.1177/0883073817701368. Epub 2017 Apr 9. J Child Neurol. 2017. PMID: 28393671 Free PMC article.
33 results