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Development of models of care coordination for rare conditions: a qualitative study.
Walton H, Simpson A, Ramsay AIG, Hunter A, Jones J, Ng PL, Leeson-Beevers K, Bloom L, Kai J, Kokocinska M, Sutcliffe AG, Morris S, Fulop NJ. Walton H, et al. Among authors: hunter a. Orphanet J Rare Dis. 2022 Feb 14;17(1):49. doi: 10.1186/s13023-022-02190-3. Orphanet J Rare Dis. 2022. PMID: 35164822 Free PMC article.
Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance.
Mickute G, Staley K, Delaney H, Gardiner O, Hunter A, Keen R, Lockhart L, Meade N, Newman M, Ralston S, Rush E, Upadhyaya S, Regan S, Watts L, Walsh J, White P, Francis RM, Javaid MK. Mickute G, et al. Among authors: hunter a. Orphanet J Rare Dis. 2020 May 19;15(1):117. doi: 10.1186/s13023-020-01398-5. Orphanet J Rare Dis. 2020. PMID: 32430048 Free PMC article.
Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.
Walton H, Ng PL, Simpson A, Bloom L, Chitty LS, Fulop NJ, Hunter A, Jones J, Kai J, Kerecuk L, Kokocinska M, Leeson-Beevers K, Parkes S, Ramsay AIG, Sutcliffe A, Taylor C, Morris S. Walton H, et al. Among authors: hunter a. Orphanet J Rare Dis. 2023 Nov 23;18(1):364. doi: 10.1186/s13023-023-02934-9. Orphanet J Rare Dis. 2023. PMID: 37996938 Free PMC article.
Preferences for coordinated care for rare diseases: discrete choice experiment.
Morris S, Walton H, Simpson A, Leeson-Beevers K, Bloom L, Hunter A, Ramsay AIG, Fulop NJ, Chitty LS, Kai J, Sutcliffe AG, Kokocinska M, Kerecuk L, Taylor CA, Ng PL. Morris S, et al. Among authors: hunter a. Orphanet J Rare Dis. 2024 Sep 9;19(1):332. doi: 10.1186/s13023-024-03353-0. Orphanet J Rare Dis. 2024. PMID: 39252123 Free PMC article.
2,180 results