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Development of models of care coordination for rare conditions: a qualitative study.
Walton H, Simpson A, Ramsay AIG, Hunter A, Jones J, Ng PL, Leeson-Beevers K, Bloom L, Kai J, Kokocinska M, Sutcliffe AG, Morris S, Fulop NJ. Walton H, et al. Among authors: jones j. Orphanet J Rare Dis. 2022 Feb 14;17(1):49. doi: 10.1186/s13023-022-02190-3. Orphanet J Rare Dis. 2022. PMID: 35164822 Free PMC article.
Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.
Walton H, Ng PL, Simpson A, Bloom L, Chitty LS, Fulop NJ, Hunter A, Jones J, Kai J, Kerecuk L, Kokocinska M, Leeson-Beevers K, Parkes S, Ramsay AIG, Sutcliffe A, Taylor C, Morris S. Walton H, et al. Among authors: jones j. Orphanet J Rare Dis. 2023 Nov 23;18(1):364. doi: 10.1186/s13023-023-02934-9. Orphanet J Rare Dis. 2023. PMID: 37996938 Free PMC article.
Patient experience and reflective learning (PEARL): a mixed methods protocol for staff insight development in acute and intensive care medicine in the UK.
Brookes O, Brown C, Tarrant C, Archer J, Buckley D, Buckley LM, Clement I, Evison F, Gao Smith F, Gibbins C, Hayton E, Jones J, Lilford R, Mullhi R, Packer G, Perkins G, Shelton J, Snelson C, Sullivan P, Vlaev I, Wolstenholme D, Wright SE, Bion J; On-behalf-of the PEARL Collaboration. Brookes O, et al. Among authors: jones j. BMJ Open. 2019 Jul 24;9(7):e030679. doi: 10.1136/bmjopen-2019-030679. BMJ Open. 2019. PMID: 31345985 Free PMC article.
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