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Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000-2015.
Thomas S, Conway KM, Fapo O, Street N, Mathews KD, Mann JR, Romitti PA, Soim A, Westfield C, Fox DJ, Ciafaloni E; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Thomas S, et al. Muscle Nerve. 2022 Aug;66(2):193-197. doi: 10.1002/mus.27532. Epub 2022 Apr 11. Muscle Nerve. 2022. PMID: 35312090 Free PMC article.
Is There a Delay in Diagnosis of Duchenne Muscular Dystrophy Among Preterm-Born Males?
Soim A, Smith MG, Kwon JM, Mann JR, Thomas S, Ciafaloni E; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR net). Soim A, et al. Among authors: thomas s. J Child Neurol. 2018 Jul;33(8):537-545. doi: 10.1177/0883073818773029. Epub 2018 May 15. J Child Neurol. 2018. PMID: 29759004 Free PMC article.
Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United States.
Wallace B, Smith KT, Thomas S, Conway KM, Westfield C, Andrews JG, Weinert RO, Do TQN, Street N; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Wallace B, et al. Among authors: thomas s. Birth Defects Res. 2021 Apr 15;113(7):560-569. doi: 10.1002/bdr2.1764. Epub 2020 Jul 24. Birth Defects Res. 2021. PMID: 32710484 Free PMC article.
Health Profile of Preterm Males With Duchenne Muscular Dystrophy.
Soim A, Wallace B, Whitehead N, Smith MG, Mann JR, Thomas S, Ciafaloni E; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Soim A, et al. Among authors: thomas s. J Child Neurol. 2021 Oct;36(12):1095-1102. doi: 10.1177/08830738211047019. Epub 2021 Oct 22. J Child Neurol. 2021. PMID: 34677095 Free PMC article.
Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne muscular dystrophy from MD STARnet.
Butterfield RJ, Kirkov S, Conway KM, Johnson N, Matthews D, Phan H, Cai B, Paramsothy P, Thomas S, Feldkamp ML. Butterfield RJ, et al. Among authors: thomas s. Muscle Nerve. 2022 Jul;66(1):15-23. doi: 10.1002/mus.27490. Epub 2022 Jan 20. Muscle Nerve. 2022. PMID: 34994466 Free PMC article.
Genetic Patterns of Selected Muscular Dystrophies in the Muscular Dystrophy Surveillance, Tracking, and Research Network.
Kang PB, Jorand-Fletcher M, Zhang W, McDermott SW, Berry R, Chambers C, Wong KN, Mohamed Y, Thomas S, Venkatesh YS, Westfield C, Whitehead N, Johnson NE; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Kang PB, et al. Among authors: thomas s. Neurol Genet. 2023 Nov 17;9(6):e200113. doi: 10.1212/NXG.0000000000200113. eCollection 2023 Dec. Neurol Genet. 2023. PMID: 38045992 Free PMC article.
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