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The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors in France, Germany and the United Kingdom: Patient-reported insights on symptoms and quality of life.
Panse J, Sicre de Fontbrune F, Burmester P, Piggin M, Matos JE, Costantino H, Wilson K, Hakimi Z, Nazir J, Desgraz R, Fishman J, Persson E, Kulasekararaj A. Panse J, et al. Among authors: burmester p. Eur J Haematol. 2022 Oct;109(4):351-363. doi: 10.1111/ejh.13816. Epub 2022 Jul 7. Eur J Haematol. 2022. PMID: 35746830 Free PMC article.
Internet-based patient survey on the consequences of COVID-19 lockdown on treatment and medical follow-up of patients with aplastic anemia or paroxysmal nocturnal hemoglobinuria in Germany.
Beier F, Kricheldorf K, Burmester P, Göbel U, Isfort S, Panse J, Brümmendorf TH. Beier F, et al. Among authors: burmester p. Eur J Haematol. 2021 May;106(5):740-742. doi: 10.1111/ejh.13587. Epub 2021 Feb 17. Eur J Haematol. 2021. PMID: 33501692 Free PMC article. No abstract available.
The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors: clinical outcomes and medical encounters from the patient perspective.
Sicre de Fontbrune F, Burmester P, Piggin M, Matos JE, Costantino H, Wilson K, Hakimi Z, Nazir J, Desgraz R, Fishman J, Persson E, Panse J. Sicre de Fontbrune F, et al. Among authors: burmester p. Hematology. 2022 Dec;27(1):1140-1151. doi: 10.1080/16078454.2022.2127630. Hematology. 2022. PMID: 36165770 Free article.