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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND).
Kwakkenbos L, Carrier ME, Welling J, Turner KA, Cumin J, Pépin M, van den Ende C, Schouffoer AA, Hudson M, van Breda W, Sauve M, Mayes MD, Malcarne VL, Nielson WR, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Among authors: pepin m. PeerJ. 2022 Aug 4;10:e13471. doi: 10.7717/peerj.13471. eCollection 2022. PeerJ. 2022. PMID: 35945943 Free PMC article. Clinical Trial.
Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial.
Thombs BD, Dyas L, Pépin M, Aguila K, Carrier ME, Tao L, Harb S, Malcarne VL, El-Baalbaki G, Peláez S, Sauve M, Hudson M, Platt RW; SPIN-SSLED Patient Advisory Team. Thombs BD, et al. Among authors: pepin m. BMJ Open. 2019 Nov 11;9(11):e029935. doi: 10.1136/bmjopen-2019-029935. BMJ Open. 2019. PMID: 31719073 Free PMC article.
The Scleroderma Research Topics Survey for patients and health care professionals: A Scleroderma Patient-centered Intervention Network Project.
Tao L, Fedoruk C, Turner KA, Cumin J, Carrier ME, Carboni-Jiménez A, Pépin MR, Kwakkenbos L, Thombs BD; SPIN Patient Advisory Board. Tao L, et al. J Scleroderma Relat Disord. 2019 Oct;4(3):165-172. doi: 10.1177/2397198319842969. Epub 2019 Apr 23. J Scleroderma Relat Disord. 2019. PMID: 35382508 Free PMC article.
Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-Sectional Study.
Gumuchian ST, Delisle VC, Peláez S, Malcarne VL, El-Baalbaki G, Kwakkenbos L, Jewett LR, Carrier ME, Pépin M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Gumuchian ST, et al. Among authors: pepin m. Arthritis Care Res (Hoboken). 2018 Feb;70(2):275-283. doi: 10.1002/acr.23220. Epub 2018 Jan 11. Arthritis Care Res (Hoboken). 2018. PMID: 28217869
Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys.
Kwakkenbos L, Carboni-Jiménez A, Carrier ME, Pépin M, Peláez S, Malcarne VL, El-Baalbaki G, Thombs BD; Scleroderma Patient-centered Intervention Network Support Group Project Advisory Team. Kwakkenbos L, et al. Among authors: pepin m. Disabil Rehabil. 2021 May;43(9):1279-1286. doi: 10.1080/09638288.2019.1656292. Epub 2019 Sep 14. Disabil Rehabil. 2021. PMID: 31522575 Free article.
Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.
Gumuchian ST, Delisle VC, Kwakkenbos L, Pépin M, Carrier ME, Malcarne VL, Peláez S, El-Baalbaki G, Thombs BD; Scleroderma Support Group Project Advisory Team. Gumuchian ST, et al. Among authors: pepin m. Disabil Rehabil. 2019 Apr;41(8):974-982. doi: 10.1080/09638288.2017.1416497. Epub 2017 Dec 19. Disabil Rehabil. 2019. PMID: 29254393
Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey.
Delisle VC, Gumuchian ST, El-Baalbaki G, Körner A, Malcarne VL, Peláez S, Carrier ME, Pépin M, Thombs BD; Scleroderma Support Group Project Advisory Team. Delisle VC, et al. Among authors: pepin m. Disabil Rehabil. 2019 Oct;41(20):2477-2482. doi: 10.1080/09638288.2018.1467970. Epub 2018 Apr 26. Disabil Rehabil. 2019. PMID: 29696997
Development and preliminary validation of the Scleroderma Support Group Leader Self-efficacy Scale.
Pal NE, Gumuchian ST, Delisle VC, Pépin M, Malcarne VL, Carrier ME, Kwakkenbos L, Peláez S, El-Baalbaki G, Thombs BD; Scleroderma Support Group Project Advisory Team*. Pal NE, et al. Among authors: pepin m. J Scleroderma Relat Disord. 2018 Feb;3(1):106-111. doi: 10.5301/jsrd.5000260. Epub 2017 Sep 25. J Scleroderma Relat Disord. 2018. PMID: 35382120 Free PMC article.
Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey.
Pépin M, Kwakkenbos L, Carrier ME, Peláez S, El-Baalbaki G, Malcarne VL, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) Support Group Project Advisory Team. Pépin M, et al. J Scleroderma Relat Disord. 2019 Oct;4(3):173-186. doi: 10.1177/2397198319849806. Epub 2019 May 29. J Scleroderma Relat Disord. 2019. PMID: 35382506 Free PMC article.
357 results