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Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey).
de Boer D, van den Berg M, Ballester M, Bloemeke J, Boerma W, de Bienassis K, Groenewegen P, Groene O, Kendir C, Klazinga N, Porter I, Sunol R, Thomas L, Valderas JM, Williams R, Rijken M. de Boer D, et al. Among authors: bloemeke j. BMJ Open. 2022 Sep 19;12(9):e061424. doi: 10.1136/bmjopen-2022-061424. BMJ Open. 2022. PMID: 36123114 Free PMC article.
Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES).
Bloemeke J, Sommer R, Witt S, Dabs M, Badia FJ, Bullinger M, Quitmann J. Bloemeke J, et al. Disabil Rehabil. 2019 Jul;41(15):1815-1825. doi: 10.1080/09638288.2018.1447028. Epub 2018 Mar 8. Disabil Rehabil. 2019. PMID: 29516753
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia.
Bloemeke J, Sommer R, Witt S, Bullinger M, Nordon C, Badia FJ, González FL, Leiva-Gea A, Delgado Rufino FB, Mayoral-Cleries F, Romero-Sanchiz P, Clamagirand Saiz V, Nogueira-Arjona R, Mohnike K, Quitmann J. Bloemeke J, et al. Qual Life Res. 2019 Sep;28(9):2553-2563. doi: 10.1007/s11136-019-02210-z. Epub 2019 May 15. Qual Life Res. 2019. PMID: 31093848
Patient-Reported Outcomes-The Value of Observational Assessments.
Witt S, Bloemeke J, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J. Witt S, et al. Among authors: bloemeke j. Eur J Pediatr Surg. 2021 Oct;31(5):454-455. doi: 10.1055/s-0041-1729897. Epub 2021 Jun 14. Eur J Pediatr Surg. 2021. PMID: 34126637 No abstract available.
16 results