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'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics.
Nguyen CQ, Kariyawasam D, Alba-Concepcion K, Grattan S, Hetherington K, Wakefield CE, Woolfenden S, Dale RC, Palmer EE, Farrar MA. Nguyen CQ, et al. Among authors: hetherington k. Health Expect. 2022 Dec;25(6):3175-3191. doi: 10.1111/hex.13625. Epub 2022 Oct 28. Health Expect. 2022. PMID: 36307981 Free PMC article.
Author reply.
Sansom-Daly UM, Wakefield CE, Hetherington K, Evans HE, Ellis SJ, McGill BC, Cohn RJ. Sansom-Daly UM, et al. Among authors: hetherington k. Intern Med J. 2019 Jun;49(6):808-809. doi: 10.1111/imj.14320. Intern Med J. 2019. PMID: 31185532 No abstract available.
"Balancing Expectations with Actual Realities": Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial.
McGill BC, Wakefield CE, Hetherington K, Munro LJ, Warby M, Lau L, Tyrrell V, Ziegler DS, O'Brien TA, Marshall GM, Malkin D, Hansford JR, Tucker KM, Vetsch J. McGill BC, et al. Among authors: hetherington k. J Pers Med. 2020 Feb 14;10(1):9. doi: 10.3390/jpm10010009. J Pers Med. 2020. PMID: 32075154 Free PMC article.
62 results