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The Collaborative National Quality and Efficacy Registry for Scleroderma: association of medication use on gastrointestinal tract symptoms in early disease and the importance of tobacco cessation.
Luebker S, Frech TM, Assassi S, Gordon JK, Bernstein EJ, Steen VD, Shah AA, Hummers LK, Richardson C, Khanna D, Castelino FV, Chung L, Hant FN, Shanmugam VK, VanBuren JM, Alvey J, Harding M, Sandorfi N. Luebker S, et al. Among authors: gordon jk. Clin Exp Rheumatol. 2023 Aug;41(8):1632-1638. doi: 10.55563/clinexprheumatol/04rauu. Epub 2023 Jul 25. Clin Exp Rheumatol. 2023. PMID: 37497718 Free article.
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
Efficacy and Safety of Lenabasum, a Cannabinoid Type 2 Receptor Agonist, in a Phase 3 Randomized Trial in Diffuse Cutaneous Systemic Sclerosis.
Spiera R, Kuwana M, Khanna D, Hummers L, Frech TM, Stevens W, Matucci-Cerinic M, Kafaja S, Distler O, Jun JB, Levy Y, Leszcyzński P, Gordon J, Steen V, Lee EB, Jankowski T, Litinsky I, Chung L, Hsu V, Mayes M, Sandorfi N, Simms RW, Finzel S, de Vries-Bouwstra J, Constantine S, Dgetluck N, Dinh Q, Bloom BJ, Furst DE, White B, Denton CP; RESOLVE-1 Study Group. Spiera R, et al. Arthritis Rheumatol. 2023 Sep;75(9):1608-1618. doi: 10.1002/art.42510. Epub 2023 Jun 15. Arthritis Rheumatol. 2023. PMID: 37098795 Free article. Clinical Trial.
Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study.
Nassar EL, Virgili-Gervais G, Carrier ME, Kwakkenbos L, Henry RS, Hu S, Provencher S, Golberg M, Bartlett SJ, Mouthon L, Patten SB, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team, on behalf of the SPIN Investigators. Nassar EL, et al. Lancet Rheumatol. 2024 Oct;6(10):e660-e663. doi: 10.1016/S2665-9913(24)00166-8. Epub 2024 Jun 26. Lancet Rheumatol. 2024. PMID: 38944052 No abstract available.
Minimal Detectable Changes of the Health Assessment Questionnaire-Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study.
Alkan A, Carrier ME, Henry RS, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Wojeck RK, Worron-Sauvé M, Benedetti A, Thombs BD; Scleroderma Patient‐Centered Intervention Network Investigators. Alkan A, et al. Arthritis Care Res (Hoboken). 2024 Nov;76(11):1549-1557. doi: 10.1002/acr.25397. Epub 2024 Aug 27. Arthritis Care Res (Hoboken). 2024. PMID: 38932481
COVID-19 vaccinations and infections among individuals with systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.
Lakin KS, Wu Y, Gordon JK, Kwakkenbos L, Carrier ME, Henry RS, Denton CP, Mouthon L, Spiera RF, Thombs BD; SPIN COVID-19 Vaccination Patient Advisory Team; SPIN Investigators. Lakin KS, et al. Among authors: gordon jk. Semin Arthritis Rheum. 2024 Aug;67:152453. doi: 10.1016/j.semarthrit.2024.152453. Epub 2024 May 9. Semin Arthritis Rheum. 2024. PMID: 38851172
117 results