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Recommendations to address respondent burden associated with patient-reported outcome assessment.
Aiyegbusi OL, Cruz Rivera S, Roydhouse J, Kamudoni P, Alder Y, Anderson N, Baldwin RM, Bhatnagar V, Black J, Bottomley A, Brundage M, Cella D, Collis P, Davies EH, Denniston AK, Efficace F, Gardner A, Gnanasakthy A, Golub RM, Hughes SE, Jeyes F, Kern S, King-Kallimanis BL, Martin A, McMullan C, Mercieca-Bebber R, Monteiro J, Peipert JD, Quijano-Campos JC, Quinten C, Rantell KR, Regnault A, Sasseville M, Schougaard LMV, Sherafat-Kazemzadeh R, Snyder C, Stover AM, Verdi R, Wilson R, Calvert MJ. Aiyegbusi OL, et al. Among authors: stover am. Nat Med. 2024 Mar;30(3):650-659. doi: 10.1038/s41591-024-02827-9. Epub 2024 Feb 29. Nat Med. 2024. PMID: 38424214 Review.
Item banks for alcohol use from the Patient-Reported Outcomes Measurement Information System (PROMIS): use, consequences, and expectancies.
Pilkonis PA, Yu L, Colditz J, Dodds N, Johnston KL, Maihoefer C, Stover AM, Daley DC, McCarty D. Pilkonis PA, et al. Among authors: stover am. Drug Alcohol Depend. 2013 Jun 1;130(1-3):167-77. doi: 10.1016/j.drugalcdep.2012.11.002. Epub 2012 Dec 1. Drug Alcohol Depend. 2013. PMID: 23206377 Free PMC article. Clinical Trial.
Building PROMIS item banks: librarians as co-investigators.
Klem M, Saghafi E, Abromitis R, Stover A, Dew MA, Pilkonis P. Klem M, et al. Qual Life Res. 2009 Sep;18(7):881-8. doi: 10.1007/s11136-009-9498-7. Epub 2009 Jun 23. Qual Life Res. 2009. PMID: 19548118 Free PMC article.
Pediatric lymphoma patients in Malawi present with poor health-related quality of life at diagnosis and improve throughout treatment and follow-up across all Pediatric PROMIS-25 domains.
Ellis GK, Chapman H, Manda A, Salima A, Itimu S, Banda G, Seguin R, Manda G, Butia M, Huibers M, Ozuah N, Tilly A, Stover AM, Basch E, Gopal S, Reeve BB, Westmoreland KD. Ellis GK, et al. Among authors: stover am. Pediatr Blood Cancer. 2021 Oct;68(10):e29257. doi: 10.1002/pbc.29257. Epub 2021 Aug 2. Pediatr Blood Cancer. 2021. PMID: 34339099 Free PMC article.
Electronic patient-reported outcomes monitoring during lung cancer chemotherapy: A nested cohort within the PRO-TECT pragmatic trial (AFT-39).
Mody GN, Stover AM, Wang M, King-Kallimanis BL, Jansen J, Henson S, Chung AE, Jonsson M, Bennett A, Smith AB, Wood WA, Deal A, Ginos B, Dueck AC, Schrag D, Basch E. Mody GN, et al. Among authors: stover am. Lung Cancer. 2021 Dec;162:1-8. doi: 10.1016/j.lungcan.2021.09.020. Epub 2021 Sep 30. Lung Cancer. 2021. PMID: 34634754
Patient reported outcome assessment must be inclusive and equitable.
Calvert MJ, Cruz Rivera S, Retzer A, Hughes SE, Campbell L, Molony-Oates B, Aiyegbusi OL, Stover AM, Wilson R, McMullan C, Anderson NE, Turner GM, Davies EH, Verdi R, Velikova G, Kamudoni P, Muslim S, Gheorghe A, O'Connor D, Liu X, Wu AW, Denniston AK. Calvert MJ, et al. Among authors: stover am. Nat Med. 2022 Jun;28(6):1120-1124. doi: 10.1038/s41591-022-01781-8. Nat Med. 2022. PMID: 35513530 Free article. No abstract available.
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