Inhestern L - Search Results

1

The needs of families of pediatric cancer survivors: challenges and developments in psychosocial support services.

Paul V, Inhestern L, Sigmund D, Winzig J, Rutkowski S, Escherich G, Bergelt C. Paul V, et al. Among authors: inhestern l. Pediatr Res. 2024 Oct 22. doi: 10.1038/s41390-024-03662-x. Online ahead of print. Pediatr Res. 2024. PMID: 39438710

2

Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study.

Brandt M, Driemeyer J, Johannsen J, Denecke J, Inhestern L, Bergelt C. Brandt M, et al. Among authors: inhestern l. BMC Psychol. 2024 Oct 17;12(1):566. doi: 10.1186/s40359-024-02070-4. BMC Psychol. 2024. PMID: 39420400 Free PMC article.

3

Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review.

Zybarth D, Inhestern L, Otto R, Bergelt C. Zybarth D, et al. Among authors: inhestern l. Heliyon. 2024 Sep 28;10(19):e38677. doi: 10.1016/j.heliyon.2024.e38677. eCollection 2024 Oct 15. Heliyon. 2024. PMID: 39403533 Free PMC article.

4

Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making.

Bosch I, Siebel H, Heiser M, Inhestern L. Bosch I, et al. Among authors: inhestern l. Pediatr Res. 2024 Oct 6. doi: 10.1038/s41390-024-03509-5. Online ahead of print. Pediatr Res. 2024. PMID: 39370449

5

Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors.

Paul V, Inhestern L, Sigmund D, Winzig J, Rutkowski S, Escherich G, Bergelt C. Paul V, et al. Among authors: inhestern l. Pediatr Res. 2024 Jun 17. doi: 10.1038/s41390-024-03320-2. Online ahead of print. Pediatr Res. 2024. PMID: 38886508

6

Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis.

Winzig J, Inhestern L, Sigmund D, Paul V, Hail LA, Rutkowski S, Escherich G, Bergelt C. Winzig J, et al. Among authors: inhestern l. Cancer Med. 2024 May;13(10):e7234. doi: 10.1002/cam4.7234. Cancer Med. 2024. PMID: 38752459 Free PMC article.

7

Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study.

Inhestern L, Otto R, Brandt M, Zybarth D, Oheim R, Schüler H, Mir TS, Tsiakas K, Dibaj P, Zschüntzsch J, Okun PM, Hegenbart U, Sommerburg O, Schramm C, Weiler-Normann C, Härter M, Bergelt C. Inhestern L, et al. Orphanet J Rare Dis. 2024 May 13;19(1):197. doi: 10.1186/s13023-024-03207-9. Orphanet J Rare Dis. 2024. PMID: 38741100 Free PMC article.

8

Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program.

Inhestern L, Nasse ML, Krauth KA, Kandels D, Rutkowski S, Escherich G, Bergelt C. Inhestern L, et al. Front Pediatr. 2024 Mar 7;12:1288567. doi: 10.3389/fped.2024.1288567. eCollection 2024. Front Pediatr. 2024. PMID: 38516352 Free PMC article.

9

And what about today? Burden and support needs of adolescent childhood cancer survivors in long-term follow-up care-A qualitative content analysis.

Winzig J, Inhestern L, Sigmund D, Paul V, Hail LA, Rutkowski S, Escherich G, Bergelt C. Winzig J, et al. Among authors: inhestern l. Child Care Health Dev. 2024 Jan;50(1):e13207. doi: 10.1111/cch.13207. Epub 2023 Dec 11. Child Care Health Dev. 2024. PMID: 38083813

10

[Consequences of a pandemic for people living with rare diseases and recommendations for maintaining healthcare and participation].

Zybarth D, Brandt M, Mundlos C, Inhestern L. Zybarth D, et al. Among authors: inhestern l. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2024 Jan;67(1):57-65. doi: 10.1007/s00103-023-03810-4. Epub 2023 Nov 29. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2024. PMID: 38019314 Free PMC article. German.

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