Jones JT - Search Results

1

Community Social Networking for Ehlers-Danlos Syndrome.

Callen EF, Clay TL, Cogan W, Black WR, Jones JT, Mabachi N. Callen EF, et al. Among authors: jones jt. Health Educ Behav. 2024 Oct 30:10901981241292275. doi: 10.1177/10901981241292275. Online ahead of print. Health Educ Behav. 2024. PMID: 39474797

2

Provider Knowledge and Experience in Care, Management, and Education of Pediatric Ehlers-Danlos syndrome.

Jones JT, Black WR. Jones JT, et al. Glob Pediatr Health. 2022 Jul 19;9:2333794X221112841. doi: 10.1177/2333794X221112841. eCollection 2022. Glob Pediatr Health. 2022. PMID: 35873707 Free PMC article. No abstract available.

3

Resource utilization and multidisciplinary care needs for patients with Ehlers-Danlos syndrome.

Jones JT, Black WR, Cogan W, Callen E. Jones JT, et al. Mol Genet Genomic Med. 2022 Nov;10(11):e2057. doi: 10.1002/mgg3.2057. Epub 2022 Sep 24. Mol Genet Genomic Med. 2022. PMID: 36151850 Free PMC article.

4

Gender dysphoria in adolescents with Ehlers-Danlos syndrome.

Jones JT, Black WR, Moser CN, Rush ET, Malloy Walton L. Jones JT, et al. SAGE Open Med. 2022 Dec 25;10:20503121221146074. doi: 10.1177/20503121221146074. eCollection 2022. SAGE Open Med. 2022. PMID: 36600979 Free PMC article.

5

Development of a Multidisciplinary Clinic for Patients with Ehlers Danlos Syndromes: Considerations and Strategies.

Black WR, Jones JT, Rush ET, Malloy Walton L, Harding A. Black WR, et al. Among authors: jones jt. J Multidiscip Healthc. 2023 Jan 21;16:191-195. doi: 10.2147/JMDH.S396221. eCollection 2023. J Multidiscip Healthc. 2023. PMID: 36714240 Free PMC article.

6

Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis.

Black WR, Black LL, Jones JT. Black WR, et al. Among authors: jones jt. Glob Pediatr Health. 2023 Nov 22;10:2333794X231212081. doi: 10.1177/2333794X231212081. eCollection 2023. Glob Pediatr Health. 2023. PMID: 38024462 Free PMC article.

7

Cardiovascular Symptoms, Dysautonomia, and Quality of Life in Adult and Pediatric Patients with Hypermobile Ehlers-Danlos Syndrome: A Brief Review.

Hertel A, Black WR, Malloy Walton L, Martin J, Jones J. Hertel A, et al. Curr Cardiol Rev. 2024 Jan 24;20(1):E240124226070. doi: 10.2174/011573403X271096231203164216. Online ahead of print. Curr Cardiol Rev. 2024. PMID: 38275067 Free PMC article.

8

Patient and Parent Knowledge, Understanding, and Concerns After a New Diagnosis of Ehlers Danlos Syndrome.

Jones JT, Black LL, Black WR. Jones JT, et al. Res Sq [Preprint]. 2024 Jun 10:rs.3.rs-4433259. doi: 10.21203/rs.3.rs-4433259/v1. Res Sq. 2024. Update in: Orphanet J Rare Dis. 2024 Dec 30;19(1):493. doi: 10.1186/s13023-024-03517-y PMID: 38946955 Free PMC article. Updated. Preprint.

9

The need for primary care providers in the clinical management of hypermobility spectrum disorders and ehlers-danlos syndrome: a call to action.

Black WR, Black LL, Goldstein-Leever A, Fox LS, Pratt LR, Jones JT. Black WR, et al. Among authors: jones jt. Rheumatol Int. 2024 Nov;44(11):2273-2278. doi: 10.1007/s00296-024-05676-4. Epub 2024 Aug 7. Rheumatol Int. 2024. PMID: 39110211

10

Effect of joint hypermobility on outcomes of children with juvenile idiopathic arthritis.

Black WR, Singleton J, Wang X, Harris JG, Jones JT. Black WR, et al. Among authors: jones jt. Clin Rheumatol. 2024 Nov;43(11):3449-3455. doi: 10.1007/s10067-024-07130-z. Epub 2024 Sep 4. Clin Rheumatol. 2024. PMID: 39227525

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