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Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network.
Paramsothy P, Wang Y, Cai B, Conway KM, Johnson NE, Pandya S, Ciafaloni E, Mathews KD, Romitti PA, Howard JF Jr, Riley C. Paramsothy P, et al. Neuromuscul Disord. 2022 Jun;32(6):468-476. doi: 10.1016/j.nmd.2022.04.008. Epub 2022 Apr 30. Neuromuscul Disord. 2022. PMID: 35597713 Free PMC article.
Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United States.
Wallace B, Smith KT, Thomas S, Conway KM, Westfield C, Andrews JG, Weinert RO, Do TQN, Street N; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Wallace B, et al. Birth Defects Res. 2021 Apr 15;113(7):560-569. doi: 10.1002/bdr2.1764. Epub 2020 Jul 24. Birth Defects Res. 2021. PMID: 32710484 Free PMC article.
Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy.
Haber G, Conway KM, Paramsothy P, Roy A, Rogers H, Ling X, Kozauer N, Street N, Romitti PA, Fox DJ, Phan HC, Matthews D, Ciafaloni E, Oleszek J, James KA, Galindo M, Whitehead N, Johnson N, Butterfield RJ, Pandya S, Venkatesh S, Bhattaram VA. Haber G, et al. Muscle Nerve. 2021 Feb;63(2):181-191. doi: 10.1002/mus.27113. Epub 2020 Nov 17. Muscle Nerve. 2021. PMID: 33150975 Free PMC article.
Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000-2015.
Thomas S, Conway KM, Fapo O, Street N, Mathews KD, Mann JR, Romitti PA, Soim A, Westfield C, Fox DJ, Ciafaloni E; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Thomas S, et al. Muscle Nerve. 2022 Aug;66(2):193-197. doi: 10.1002/mus.27532. Epub 2022 Apr 11. Muscle Nerve. 2022. PMID: 35312090 Free PMC article.
A population-based study of scoliosis among males diagnosed with a dystrophinopathy identified by the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).
Conway KM, Gedlinske A, Mathews KD, Perlman S, Johnson N, Butterfield R, Hung M, Bounsanga J, Matthews D, Oleszek J, Romitti PA. Conway KM, et al. Muscle Nerve. 2022 Feb;65(2):193-202. doi: 10.1002/mus.27464. Epub 2021 Dec 1. Muscle Nerve. 2022. PMID: 34787322 Free PMC article.
11 results