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What questions should newborn screening long-term follow-up be able to answer? A statement of the US Secretary for Health and Human Services' Advisory Committee on Heritable Disorders in Newborns and Children.
Hinton CF, Feuchtbaum L, Kus CA, Kemper AR, Berry SA, Levy-Fisch J, Luedtke J, Kaye C, Boyle CA. Hinton CF, et al. Among authors: levy fisch j. Genet Med. 2011 Oct;13(10):861-5. doi: 10.1097/GIM.0b013e3182209f09. Genet Med. 2011. PMID: 21716119 Free article.
Parental permission for pilot newborn screening research: guidelines from the NBSTRN.
Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B; Bioethics and Legal Work Group of the Newborn Screening Translational Research Network. Botkin JR, et al. Among authors: levy fisch j. Pediatrics. 2014 Feb;133(2):e410-7. doi: 10.1542/peds.2013-2271. Epub 2014 Jan 6. Pediatrics. 2014. PMID: 24394680 Free PMC article.
Insurance coverage of medical foods for treatment of inherited metabolic disorders.
Berry SA, Kenney MK, Harris KB, Singh RH, Cameron CA, Kraszewski JN, Levy-Fisch J, Shuger JF, Greene CL, Lloyd-Puryear MA, Boyle CA. Berry SA, et al. Among authors: levy fisch j. Genet Med. 2013 Dec;15(12):978-82. doi: 10.1038/gim.2013.46. Epub 2013 Apr 18. Genet Med. 2013. PMID: 23598714 Free PMC article.