Collaborating with AbbVie, we've gathered insightful Sleep Survey Results for Parkinson's. 🌙 96% of respondents reported that Parkinson's impacts their sleep. 💤 Understanding and addressing sleep issues is crucial for improving the quality of life for those affected by Parkinson's. To read more about it: https://lnkd.in/dSm-XNpT #ParkinsonsAwareness #SleepHealth #PDAvengers
PD Avengers
Non-profit Organizations
Vancouver, British Columbia 597 followers
A global alliance of people with Parkinson’s, our partners and friends, united to add urgency to the cause of ending PD.
Über uns
Our mission is to build a global alliance to end Parkinson’s. It's been more than 200 years since Dr. Parkinson's first describe the symptoms of this disorder. In that time, humanity has put man on the moon, eradicated polio, changed HIV from a death sentence to a chronic illness, has mapped the human genome; and yet, has provided precious little beyond that one fifty-year-old drug for Parkinson’s. We are tired of it. Parkinson’s is the fastest growing neurological disease on earth. It is growing faster than Alzheimer’s, faster than ALS, MS and stroke. At its current pace 1 in 15 people alive today will be diagnosed with Parkinson’s. More than 10 million people in the world have Parkinson’s representing every continent, every people group and all ages. It is indiscriminate, progressive, and degenerative. Parkinson’s is a life sentence of being trapped in a body that increasingly refuses to obey commands. According to a 2018 report in The Lancet, neurological disorders are now the leading source of disability globally. Among neurological disorders examined in the Global Burden of Disease, Injuries, and Risk Factors Study (GBD) 2015, Parkinson's disease was the fastest growing in prevalence, disability, and deaths. In that study, the overall number of people affected by the disease was estimated to have more than doubled globally from 1990 to 2015. source: https://doi.org/10.1016/S1474-4422(18)30295-3 The PD Avengers was inspired to action by the book Ending Parkinson's Disease. We are founded on a "Think Global, Act Local" philosophy and the three pillars: Wellness, Advocacy, and Research. We believe every person with Parkinson’s should have equitable access to information, medication and therapies. We believe we must build a loud, uncomfortable, ever-present voice demanding change in how the disease is seen and treated. We believe patients are integral in every aspect of research in the search for better treatments and ending Parkinson’s.
- Website
-
http://www.pdavengers.org
External link for PD Avengers
- Industrie
- Non-profit Organizations
- Größe des Unternehmens
- 2-10 Mitarbeiter
- Hauptsitz
- Vancouver, Britisch-Kolumbien
- Typ
- Nonprofit
- Gegründet
- 2020
- Spezialitäten
- Advocacy, Urgency, Uniting, Collaboration, Podcast, Reports, Pharmaceuticals, Brain, Neurology, Toxic Chemicals, Environment, Trichlorethylene, Paraquat, Chlorpyrifos, Exercise, Care Partners, Medicine, Deep Brain Stimulation, Humour, depression, non-motor symptoms, motor symptoms, and dyskenesia
Standorte
-
Primäre
Vancouver, British Columbia V2T 1W5, CA
Employees at PD Avengers
Aktualisierungen
-
🗓 Upcoming PD Avengers Meetings! PD Avengers Assemble Meeting 📅 September 25, 2024 🕚 11 AM & 4 PM Pacific Time Monthly Partner Organization Meeting 📅 September 12, 2024 🕚 11 AM Pacific Time Mark your calendars and join us for these important discussions! 🌟 #PDAvengers #Parkinsons #Meetings
-
FREE WEBINAR: PD Avengers and Abbott present "Choosing DBS: A Deep Dive into Real Patient Experiences." This webinar is hosted by PD Avenger's co-founder Larry Gifford. Join us on Thursday, September 26 from 11a-Noon PDT, 2p-3p EDT, and 7p-8p BST. You need to register for access, but it is free. https://lnkd.in/gV9zVuwv
-
-
Some highlights from the World Health Organization report on "Improving Access to Medicines for Neurological Disorders." •As passionate as we are about what PD Avenger advocates for, we believe health is truly wealth. Access to neurological care is essential yet hindered by outdated policies, financial barriers, and uneven healthcare distribution. •Prioritizing neurological disorders, strengthening health financing, and removing barriers to care are critical steps toward achieving universal health coverage and improving global health outcomes. #HealthEquity #NeurologicalCare #UniversalHealthCoverage #Parkinson #PDAvenger
-
-
-
-
-
+1
-
-
🚴♂️ Spinning Wheels Relay to End Parkinson's is in full swing! Three teams, including cyclists living with Parkinson’s, embarked on a 10,000 km journey across Canada, starting July 27, 2024. Over 60 days, they will raise funds and awareness for Parkinson ’s-related charities through nationwide events. 🌟 Last week, one of our partners, Larry Gifford, had the privilege to attend the Spinning Wheels Relay race, cheering on participants like Henry Gifford, Rob & Emily Warner, Mike Loghrin, Jim Redmond, and David. The West Coast Relay kicked off last weekend, and we're counting down to the grand finale in Ottawa on September 28, 2024. Join us in supporting Canadians living with Parkinson's as we pedal towards this cause! 🚴♀️ #ParkinsonsAwareness #SpinningWheelsRelay #EndParkinson
-
-
-
-
-
+3
-
-
PD Avengers reposted this
I had the great opportunity to help launch the World Parkinson Coalition's "Parkinson's Ready Program" in Vancouver this morning JW Marriott Parq Vancouver in partnership with PD Avengers and Parkinson Society British Columbia. Parkinson's is the fastest growing neurological condition in the world, is your business "Parkinson's Ready?"
“This training program not only educates and empowers Vancouver's front-line workers but also sends a powerful message of inclusion and support to the global Parkinson's community.” - Larry Gifford, PD Avengers https://lnkd.in/exJvANTV Learn more: https://lnkd.in/eqJjzWum #ParkinsonReady #VancouverBC #Parkinsons
Parkinson Ready Program - Vancouver (Larry Gifford)
https://www.youtube.com/
-
PD Avengers is proud to partnering with I AM ALS and other neurodegenerative diseases to help bring an end to these diseases. 1 in 3 people in the world are diagnosed with a brain disorder -- and the pace of diagnosis is only increasing. https://lnkd.in/gadnzpCA
-
Spinning Wheels Relay to End Parkinson's -- Three Starting Points, 10k KM, meet up in Ottawa September 28th! West Coast Relay started last weekend...
Spinning Wheels Relay Day 2 and 3! Featuring 15-year old Henry Gifford, Rob & Emily Warner, Mike Loghrin, Jim Redmond and David.
Spinning Wheels Relay 2024 - West Coast Ride Days 2 and 3 from Vancouver to Sunshine Valley
https://www.youtube.com/
-
Calling all of PD Avenger Members!! We have our Assemble Meeting TODAY at 11 am and 4 pm PST. Be sure to join: https://lnkd.in/gDh_m8kh #pdassemble #pdavengers #parkinson #meeting
-
-
The World Health Organization (WHO) released a new report today titled "Improving Access to Medicines for Neurological Disorders." The report highlights that stigma remains a significant barrier to accessing broader health services. This stigma, particularly prevalent with neurological disorders, directly impacts access to necessary medications. Additionally, stigma can lead to discrimination, limit educational and employment opportunities, strain social and family relationships, and result in abuse or human rights violations. DOWNLOAD THE REPORT: https://lnkd.in/ga4heG7p World Health Organization Omotola Thomas Natasha Fothergill-Misbah
-