Long-term follow-up of a patient with mild tetrahydrobiopterin-responsive phenylketonuria

Mol Genet Metab. 2004 Feb;81(2):137-9. doi: 10.1016/j.ymgme.2003.11.008.

Abstract

We report on the long-term follow-up of the first Italian patient with the tetrahydrobiopterin (BH4)-responsive type of phenylalanine hydroxylase deficiency (R243X/Y414C genotype). The patient was diagnosed by the newborn screening for phenylketonuria (PKU) and with a positive BH4 loading test. Introduction of BH4 (initially 10 and later 20 mg/kg/day) in addition to reduced low-phenylalanine diet resulted in therapeutic plasma phenylalanine concentrations (<340 micromol/L). Very good compliance and no side effects in this patient demonstrate the great potential of BH4 in the treatment of some patients with mild PKU.

Publication types

  • Case Reports
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Biopterins / analogs & derivatives*
  • Biopterins / genetics*
  • Female
  • Follow-Up Studies
  • Humans
  • Infant, Newborn
  • Mutation*
  • Phenylketonurias / genetics*

Substances

  • Biopterins
  • sapropterin