Centralised versus outreach models of cystic fibrosis care should be tailored to the needs of the individual patient

Intern Med J. 2020 Feb;50(2):232-235. doi: 10.1111/imj.14724.

Abstract

Cystic fibrosis (CF) is a common life-limiting genetic condition. As the disease progresses access to specialist tertiary multi-disciplinary care services may become necessary. For patients living in regional/remote Australia, accessing such services may be a challenge. Here, we describe long-term outcomes for CF patients according to their access to specialist CF centre care in childhood.

Keywords: cystic fibrosis; lung function; lung transplantation; mortality; rural; tertiary healthcare.

Publication types

  • Observational Study

MeSH terms

  • Adolescent
  • Australien
  • Child
  • Child Health Services / organization & administration*
  • Cystic Fibrosis / complications
  • Cystic Fibrosis / mortality
  • Cystic Fibrosis / therapy*
  • Female
  • Health Services Accessibility / statistics & numerical data*
  • Humans
  • Lung Transplantation / statistics & numerical data
  • Male
  • Outcome Assessment, Health Care
  • Pseudomonas Infections / etiology
  • Pseudomonas Infections / therapy*
  • Rural Health Services / organization & administration
  • Specialization
  • Treatment Outcome