Exploring Gendered Relational Dynamics in Palliative Care: A Qualitative Study on Women Professional Caregivers in India

Introduction: The gendered dynamics in palliative care settings in India are deeply influenced by societal norms, which position caregiving primarily as a woman's responsibility. This study explores the experiences of women caregivers in Bengaluru, Karnataka, India, to understand their challenges and strategies.

Methodology: This qualitative study used a narrative approach to investigate the lived experiences of 38 women caregivers from six palliative care institutions in Bengaluru. Semi-structured interviews conducted in Kannada captured the nuances of their caregiving roles. Thematic analysis was employed to identify key themes related to caregiving challenges and coping mechanisms.

Results: The study reveals that women caregivers face significant burdens due to societal expectations and institutional constraints, including resource shortages and limited professional development opportunities. Despite these challenges, the women demonstrated resilience through strong social networks, spiritual practices, and effective time management. However, relying on informal support systems highlights a gap in formal institutional support.

Implications: The findings emphasise the need for comprehensive support systems within palliative care institutions that address the practical and cultural challenges of caregiving. Future research should include a more diverse sample, including male caregivers, and explore the evolving nature of caregiving challenges.