Medical Access and Care Continuity: Qualitative Assessments of Patients with Breast Cancer and Family Members' Experiences Following the 2011 Triple Disaster in Fukushima, Japan

Disaster Med Public Health Prep. 2024 Nov 11:18:e257. doi: 10.1017/dmp.2024.162.

Abstract

Objectives: While studies have examined the effects of large-scale disasters on disaster-vulnerable individuals, these analyses may not capture the full impact. This study qualitatively explored the impacts of the March 2011 Fukushima triple disaster on patients with breast cancer and their families, aiming to highlight the importance of incorporating family narratives to grasp the full effect of large-scale disasters.

Methods: Utilizing the medical records from two hospitals, deceased patients with breast cancer from the disaster period were identified. Relatives were interviewed using a semi-structured approach. Thematic analysis was conducted via the Braun and Clarke method and Taguette transcription software.

Results: Interviews with seven family members of six patients revealed three main themes: the family's caregiving burden and their deepened bonds with the patient, the patients' extensive medical challenges and their physical and mental decline, and the shared confusion during the disaster due to resource shortages and evacuation dilemmas.

Conclusions: This study uncovered significant infrastructural issues such as reduced medical support and the heavy caregiving load on families, amidst some strengthened relationships during a time of crisis. Future research should investigate these issues across various disaster contexts, and proactive measures should be implemented to prevent exacerbation of these challenges.

Keywords: Fukushima nuclear accident; Japan; breast cancer; delivery of health care; disaster vulnerable population; qualitative research.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Breast Neoplasms* / psychology
  • Breast Neoplasms* / therapy
  • Continuity of Patient Care / standards
  • Continuity of Patient Care / statistics & numerical data
  • Family* / psychology
  • Female
  • Fukushima Nuclear Accident*
  • Health Services Accessibility / standards
  • Health Services Accessibility / statistics & numerical data
  • Humans
  • Interviews as Topic / methods
  • Japan
  • Male
  • Middle Aged
  • Qualitative Research*