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SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements.
Sangiorgi L, Boarini M, Mordenti M, Wang V, Westerheim I, Skarberg RT, Cavaller-Bellaubi M, Clancy J, Pinedo-Villanueva R, Lente EJV, Marchetti M. Sangiorgi L, et al. Orphanet J Rare Dis. 2024 Sep 12;19(1):336. doi: 10.1186/s13023-024-03341-4. Orphanet J Rare Dis. 2024. PMID: 39267100 Free PMC article.
Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study.
Boarini M, Tremosini M, Di Cecco A, Gnoli M, Brizola E, Mordenti M, Pedrini E, Locatelli M, Lanza M, Antonioli D, Gallone G, Rocca G, Staals EL, Trisolino G, Sangiorgi L. Boarini M, et al. Among authors: sangiorgi l. Qual Life Res. 2024 May;33(5):1323-1334. doi: 10.1007/s11136-024-03604-4. Epub 2024 Mar 8. Qual Life Res. 2024. PMID: 38457053 Free PMC article.
ERN BOND: The key European network leveraging diagnosis, research, and treatment for rare bone conditions.
Casareto L, Appelman-Dijkstra NM, Brandi ML, Chapurlat R, Cormier-Daire V, Hamdy NAT, Heath KE, Horn J, Mantovani G, Mohnike K, Sousa SB, Travessa A, Wekre LL, Zillikens MC, Sangiorgi L; European Reference Network on rare BONe Diseases. Casareto L, et al. Among authors: sangiorgi l. Eur J Med Genet. 2024 Apr;68:104916. doi: 10.1016/j.ejmg.2024.104916. Epub 2024 Feb 1. Eur J Med Genet. 2024. PMID: 38296035 Free article.
115 results