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SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements.
Sangiorgi L, Boarini M, Mordenti M, Wang V, Westerheim I, Skarberg RT, Cavaller-Bellaubi M, Clancy J, Pinedo-Villanueva R, Lente EJV, Marchetti M. Sangiorgi L, et al. Among authors: skarberg rt. Orphanet J Rare Dis. 2024 Sep 12;19(1):336. doi: 10.1186/s13023-024-03341-4. Orphanet J Rare Dis. 2024. PMID: 39267100 Free PMC article.