Embarrassment when illness strikes a close relative: a World Mental Health Survey Consortium Multi-Site Study

Psychol Med. 2013 Oct;43(10):2191-202. doi: 10.1017/S003329171200298X. Epub 2013 Jan 9.

Abstract

Background: In this global study we sought to estimate the degree to which a family member might feel embarrassed when a close relative is suffering from an alcohol, drug, or mental health condition (ADMC) versus a general medical condition (GMC). To date, most studies have considered embarrassment and stigma in society and internalized by the afflicted individual but have not assessed family embarrassment in a large-scale study.

Method: In 16 sites of the World Mental Health Surveys (WMHS), standardized assessments were completed including items on family embarrassment. Site matching was used to constrain local socially shared determinants of stigma-related feelings, enabling a conditional logistic regression model that estimates the embarrassment close relatives may hold in relation to family members affected by an ADMC, a GMC, or both conditions.

Results: There was a statistically robust association such that subgroups with an ADMC-affected relative were more likely to feel embarrassed compared to subgroups with a relative affected by a GMC (p<0.001), even with covariate adjustments for age and sex.

Conclusions: . The pattern of evidence from this research is consistent with conceptual models for interventions that target individual- and family-level stigma-related feelings of embarrassment as possible obstacles to effective early intervention and treatment for an ADMC. Macro-level interventions are under way but micro-level interventions may also be required among family members, along with care for each person with an ADMC.

Publication types

  • Multicenter Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Africa
  • Aged
  • Aged, 80 and over
  • Americas
  • Asia
  • Europa
  • Family Relations*
  • Female
  • Global Health / statistics & numerical data*
  • Health Status*
  • Health Surveys
  • Humans
  • Male
  • Mental Disorders / psychology
  • Mental Health / statistics & numerical data*
  • Middle Aged
  • Neuseeland
  • Social Stigma*
  • Young Adult