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Passionate about thoughtful, equitable and ethical collaboration with patient communities…
Articles by Gavin
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My thoughts on mobilizing effective pathway change in rare
My thoughts on mobilizing effective pathway change in rare
By Gavin Jones
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I am beyond excited to be packed and ready to head off to be a volunteer at the Paralympics! Humbled to be selected to be part of the Sanofi…
I am beyond excited to be packed and ready to head off to be a volunteer at the Paralympics! Humbled to be selected to be part of the Sanofi…
Liked by Gavin Jones
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The right TREE in the right PLACE at the right TIME… After a fascinating and rewarding 26 years in the Life Sciences industry, I have decided to…
The right TREE in the right PLACE at the right TIME… After a fascinating and rewarding 26 years in the Life Sciences industry, I have decided to…
Liked by Gavin Jones
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Hello LinkedIn community, Join me in the fight against MS, a cause deeply personal to me and my family. On September 28th, I'll be embarking on my…
Hello LinkedIn community, Join me in the fight against MS, a cause deeply personal to me and my family. On September 28th, I'll be embarking on my…
Liked by Gavin Jones
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More activity by Gavin
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David Edward Rose joined our team in 2018 as a social media intern, and since that time he has grown into his most recent position as our Brand and…
David Edward Rose joined our team in 2018 as a social media intern, and since that time he has grown into his most recent position as our Brand and…
Liked by Gavin Jones
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Today we say farewell to our Digital Editor Geoff Case. Geoff originally joined us freelance as a copy editor and in 2022, joined the team at RARE…
Today we say farewell to our Digital Editor Geoff Case. Geoff originally joined us freelance as a copy editor and in 2022, joined the team at RARE…
Liked by Gavin Jones
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It was a great pleasure to meet up with my old friend and colleague, Royal Pharmaceutical Society Chief Scientist, Professor Parastou Donyai today in…
It was a great pleasure to meet up with my old friend and colleague, Royal Pharmaceutical Society Chief Scientist, Professor Parastou Donyai today in…
Liked by Gavin Jones
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Reflecting on the past challenging months, navigating a "Rare Life Lived Better" has presented profound lessons. Amidst adversities, a pivotal choice…
Reflecting on the past challenging months, navigating a "Rare Life Lived Better" has presented profound lessons. Amidst adversities, a pivotal choice…
Liked by Gavin Jones
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Attending the Uplift Pathfinders Neuromuscular Alliance weekender at end of July during #disabilitypridemonth was such an empowering weekend of…
Attending the Uplift Pathfinders Neuromuscular Alliance weekender at end of July during #disabilitypridemonth was such an empowering weekend of…
Liked by Gavin Jones
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#Endocrinologists! Here's a challenge for you. Meet Natalie. She lives with the symptoms of #Acromegaly yet hasn't been been given an official…
#Endocrinologists! Here's a challenge for you. Meet Natalie. She lives with the symptoms of #Acromegaly yet hasn't been been given an official…
Liked by Gavin Jones
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Experiencing exhaustion like I haven't felt since the first few Cora Lily months but, all worth it...what a class couple of days with a stellar cast…
Experiencing exhaustion like I haven't felt since the first few Cora Lily months but, all worth it...what a class couple of days with a stellar cast…
Liked by Gavin Jones
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Many companies, organizations and umbrella groups have attempted to illustrate the odyssey a family undergoes when seeking a genetic test that may…
Many companies, organizations and umbrella groups have attempted to illustrate the odyssey a family undergoes when seeking a genetic test that may…
Liked by Gavin Jones
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