Lupus Foundation of America, Inc.

A new article reviews X chromosome inactivation research in lupus and recommends new studies consider multiple pathways and mechanisms are involved in the development of the disease beyond chromosome inactivity. Read the article:

We’re just 3️⃣ days away from our 9/19 virtual educational webinar on CAR T Cell Therapy — an innovative treatment being studied for refractory (severe) lupus. Don't miss your chance to learn more about what CAR T Cell therapy is, the early clinical trial results, and how to get involved. Time is running out! 🚨 Register now to secure your spot: https://buff.ly/3XKFA23

El lupus afecta desproporcionadamente a los miembros de la comunidad hispana/latina. Este #MesDeLaHerenciaHispana y durante todo el año, buscamos apoyar a esta comunidad a través de nuestros diferentes recursos en español y nuestras especialistas en educación para la salud de habla hispana, como Lety! Nuestras especialistas en educación para la salud están aquí para brindar apoyo no médico, educación sobre enfermedades, información y más para ayudarte a navegar la vida con lupus, tanto en español como en inglés. ¡Pónte en contacto con ellas hoy! https://buff.ly/3Xrumy4 - Lupus disproportionately affects members of the Hispanic/Latino community. This #HispanicHeritageMonth and year round, we seek to support this community through our different Spanish-language resources and our Spanish-speaking Health Education Specialists, like Lety! Our Health Education Specialists are here to provide nonmedical support, disease education, information and more to help you navigate living with lupus -- in both Spanish and English. Contact them today! https://buff.ly/4el0Gtw

A new study finds an association between decreased hospital visits and blood levels of hydroxychloroquine (Plaquenil) in people with lupus. Read the study in our latest Inside Lupus Research: https://buff.ly/3za7Ce6 #lupus #lupusresearch

A new study finds Central Retinal Artery Occlusion (an eye condition) could serve as a potential initial indicator of lupus. This finding shows the importance of early diagnosis and collaboration between healthcare professionals to improve patient outcomes. Read about the study in our latest Inside Lupus Research: https://buff.ly/4emOWGH #lupus #lupusresearch

Thank you Selena Gomez for bravely sharing your story and shining a light on the complexities of lupus and pregnancy: https://buff.ly/4d10PRR At the Lupus Foundation of America, we continue to fund research to make pregnancy safer and we offer resources on lupus and pregnancy: https://buff.ly/3iXAFcx

DYK that September is Pain Awareness Month? We're here to help with some steps that you can take to feel better! Read here to learn how you can manage your lupus pain with the help of a doctor or at home: https://buff.ly/3z013ux

Are you a lupus warrior who has a caregiver or someone who regularly helps you with tasks? If so, share this resource during National Self-Care Awareness Month about caregiver self-care to help them be their best selves when providing support: https://buff.ly/3MBAVZW #SelfCareAwarenessMonth

Thank you to everyone who joined our Lupus & You event on environmental triggers & flares! If you missed the event, don’t worry! Check out all of the resources available and the event recording, and keep an eye out for our next event in October: https://buff.ly/4cUHi5p

Lupus Warriors met with their Federal Representatives during the August District Work Period! They shared their personal experiences living with lupus and advocated to pass Pharmacy Benefit Manager (PBM) Reform, including the Safe Step Act and HELP Copays Act.    📸 Kimberly Boddie met with Representative Glenn Ivey (D-MD-4), and Michelle Cooper met with Jaci Winship, Senior Community Liaison for Rep. Ann Wagner (R-MO-2).